Apologies, this is a UK-focused post, but all perspectives welcome.
There is a well documented variance in MS services from one area of the UK to the next. The UK MS Society has referred to this as a postcode lottery. What are your experiences? Do you feel lucky to be under the care of your MS centre, or would things be improved if you lived elsewhere?
This variance might be relating to access to DMTs, or access to specialist healthcare professionals such as psychologists, dieticians or OTs. It may also relate to the speed in which you’re seen when you experience new symptoms. Or it could be about the level of support people with progressive MS receive.
Do you feel you have had access to the full range of DMTs and services when you needed them? If not, please do share your experiences.
Do you have any ideas or suggestions of how the variance in MS care in the UK could be reduced?
Are there examples from other countries we can learn from to standardise care across the UK? Any suggested solutions very much appreciated.
I am attending a meeting in a couple of weeks – https://multiplesclerosisacademy.org/wp-content/uploads/sites/3/2018/10/MS-Service-Provision-in-the-UK-the-Way-Forward-draft-5.pdf – any insights you could share would be greatly appreciated.
Thanks for your help,