@What should I do? Any advice? on Shift.ms

What should I do? Any advice?

So I have only had 2 infusions of tyabri. I know it takes about 6 months to build to therapeutic levels in your system. I have reached the point that I have a relapse every 3 weeks. (I'm not wanting to hear about how you can't have more than one relapse or more than 1 MRI every month.) Because it does happen for me. My dr knows I've only had 2 infusion but feels she should see even a tiny bit of progress and my ms is not letting up. Like clock work every three weeks it happening. My dr explained no one dmt is better than another its just what works for you. Kinda like not one size fits all. I hated hearing she wanted to switch my medication but she is excellent at what she does and is board certified in the us and in Europe. So she knows what she is doing. She mentioned ocrevus and lemantra and I was wondering what your experiences are. Which would you try first?

I’m so sorry you’re going through such a hard time and it is difficult finding a DMT that works for each individual person. I’m on Ocrevus and have had a great experience so far. I was having a lot of relapses as well and my MS was considered aggressive. I’ve only had my first two half infusions, but started doing great after a month. My walking has picked up pace and I no longer need my walker or even the ampyra. A lot of my tingles have gone away as well as the cog fog and memory issues. I rarely have spasticity, no more swallowing problems, or urinary retention. I had a slight infusion reaction the first time, just an itchy scalp, but none the second time. It is an immunosuppressant so you just need to be careful. I did get a UTI shortly after as well as the shingles, but other than that I love it so far. I’m getting an MRI next month to see if it’s made a difference slowing the progression so I’ll keep you updated. Best of luck and I hope you start doing better!