@treefern 

Last reply

treefern

What do you have to do to get support !

I just need to vent! I saw the neurologist today and he was useless ,saw the MS nurse about 6 months ago and she was useless too! I don’t want my MS to define me but I would like to know what I could be doing to slow the progression down. I know my mobility is deteriorating and I’m so tired but I look fine . I still work full time and commute to London , should I give all this up to get help or just accept that I’m not far enough gone for anyone to want to know. I have reduced my days in London due to tiredness and mobility which has helped but the neurologist seemed to think that because I’m managing now nothing needs to be done. I know I’m lucky, I’m thankful everyday but it would just be nice if someone could say ‘let’s look at everything and see where we’re going’
@Vixen

Hi @treefern, having to learn to be our own support and advocate is a tough. I am in the exact same position and have chosen to cut back on my working life in London. I'm not eligible for PIP, that much I do know. There is nothing in your profile, so I don't know where you are or which type you have. But I do get what you are going through, so at least you're not alone.....x

@treefern

Thanks, I was diagnosed in 2011 and there still seems to be a debate as to which type of MS I have (I didnt know that until today!) . I live in Cambridgeshire and my neurologist is rubbish! I really appreciate it xx