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@Shannon_Devlaminck 

Last reply

Shannon_Devlaminck

Well change in plans.

Hey all. Hope everyone is doing well. Seen my Neurologist last week and he has decided to change plans after seeing my latest MRI. So I was suppose to be going on to Ocruvus but that plan is not happening now. He has decided to take me off Copaxon completely and not replace it with anything at the moment. My latest MRI shows no new spots and all bit one in the more or less centre of my brain that is still there. But the rest have all just cleared up. He said it is very uncommon that an MRI comes back like this after what it looked like 3ish years ago. Mind you I am happy to hear this news but not very happy with the way it has left me with all the nasty issues I have to put up with still. But I guess it is the way it goes and just something I will have to live with. So we will see how this no meds thing goes. Whats the worst that can happen right? Have a great day everyone.
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@ItsMewithMS
@ItsMewithMS
 

This kind of sounds like good news? but I am kind of like you, huh? There are studies on going (at least for Rebif) that if you have had a period without active lesions and you are a certain age (I think it is more like 50) that you can pull from your DMT. That is the path I was basically on until now they say that I am likely slipping into SPMS. I don't think this is anything that Rebif could guard against and believe is the same for Copaxone. But check with your Dr. As they feel that I am progressing into SPMS without any new lesions or events the plan is to start me on Ocrevus next week. I spent a week at Mayo in Rochester MN US and they seconded that move but suggested that I wait until I have some active symptoms before doing it. I was like - What? wait until I get worse and then treat it? Kind of like putting up a fence after all the cows have gone to the next county! Glad my Dr is all set to try to prevent further loss by starting Ocrevus next week. If you have questions I'd ask them. When do they think you should go back on meds? Which meds? How often will your MRIs be to keep on top of this, etc. What symptoms should you be on guard for and what should you do about them, etc. For them you are just a patient but for you...we'll it's your life ;-)

@Highlander
@Highlander
 

So this guy reckons he's cured you..... My neurologist reckons that all MS drugs are the same and MS will get you, what ever you try. Needles to say as soon as I get my MRI results back. He's history.. I'd ask for a second opinion there is no cure for MS....if you stop them it'll only come back eventually.