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melissa-g
7 years ago

My neuro told me that cannabis is recognized as helpful for certain MS symptoms, like spasticity and such. I also personally find it helpful for pain.


stumbler
7 years ago

Take care using this as a medication. There is some strong stuff on the streets, so choose your supplier with care.


bubblesgalore
7 years ago

cannabis is not any good for me… my brain just goes to total mush… and my ms symptoms are more to the surface… i just stick to my wine.. xx


xander
7 years ago

i wonder if cannabis hid my symptoms or if it was a complete coincidence that i started getting ms symptoms 🙂 ????!!!!!?????


reddivine
7 years ago

I’m with bubbles…gimme wine or Baileys….that IS legal and I dont smoke ANYTHING.


janep
7 years ago

there’s definitely something within the plant that can help with spasticity- the relatively new Sativex spray is derived from the cannabis plant- they just took all the other ‘side effects’ away 😉


cedelle
7 years ago

@janep – where can u get that spray? i struggle with spasticity and pain, but tend to stick with copious amounts of alcohol lol x


janep
7 years ago

hi @cedelle, don’t know much about it to be honest as (touch wood) it’s not something I’ve ever needed. A quick google search suggests it is licensed in the UK but not passed by NICE as yet so it is something that local authorities are currently deciding and I think many people therefore struggle to access it 🙁 the ms society have a guide to it here… http://www.mssociety.org.uk/resources/sativex-campaigns-guide
xx


stumbler
7 years ago

@janep has hit the nail on the head. It can be made available to you, but you will probably be faced with a pre-requisite that you have tried all the existing meds first, e.g. Baclofen.

That’s a good link though, @janep


janep
7 years ago

thanks @stumbler, just trying to follow your very informative lead as resident ‘knower of things’ 🙂


bloomers1968
7 years ago

Best Painkiler thats not on the market and easier and cheaper than Sativex


marjolie
7 years ago

Hi @xander this is a contentious post, and one I’ll happily reply to with a nice story- I tried Sativex spray one day at my doctors- one pump…then nothing, two pumps…and something…. an hour later back at home I found myself watching ‘Match of the Day’ eating a pot noodle dipping after 8 mints in it.
The worst thing was I actually went to the shop and bought a Pot Noodle. I’m so ashamed. 😀
So, not a good day for dipping my toe tentatively into a whole new drug world. It’s not like smoking it – at all. For me it had a mind-numbing effect which was delivered much too speedily for my liking. If you smoke it, you can choose how much you have, when you have it, what type it is, and where you get it from at what price. My friends in Canada ‘self medicate’ and are a fount of knowledge on this, and has it helped? Yes to a degree I can’t quantify logically. I don’t trust Sativex and wouldn’t like to give it another go, but try it, it may be good for you.
I smoke occasionaly, but not just any old rubbish, it has to be good, not too solid, not weed but something which has a higher % of cannaboid and, just right. Much like porridge.
Hope that helps
Goldilocks x


Anonymous
7 years ago

So all in all half the people that slaughtered me on here are either stoned or drunk,,nice one lol


marjolie
7 years ago

If it only it were as cut and dried as that…..


xander
7 years ago

weed has never been called a cure i only asked if it help with some symptoms as i have a feeling it hid mine plus im not trying to sell it !!!!


bubblesgalore
7 years ago

lexie you are giving me the ‘ump…. this is a cyber space for us to chat not knock us. keep your negative comments to yourself. we have enough to deal with.. im sorry that you are a bitter soul.. we’re just trying to work through it.


Anonymous
7 years ago

You can not sell healing its a personal experience.People charge for there time only. And also I have offered to help for free.


xander
7 years ago

I know the mind is a powerful thing but I don’t think it has the ability to remove scars from my brain or where ever the ones are in my back(I’m new to this) I have scars all over me from falling off my bike to fighting in my teens I doubt thinking them away would work. People are able and allowed to beleave and think what they like but I’ve always had problems with people pushing there own beliefs on people that are vonrable promising the world and cures to un curable illnesses. I once worked with a woman who had breast cancer she shunned western medicine and went to a fath healer she was told she was cured and she died 3 months later


Anonymous
7 years ago

Regarding the lady that died,healing is no walk in the park and if a disease has progressed so far sometimes is is too late. But no illness is incurable if caught in time.The mind is a very powerful tool if used correctly. I am not pushing my beliefs merely explaining that MS can be beat if tackled in time.I was offered nothing by Western Medicine they sent me away to die. I thank god everyday that I found an alternative and if sharing it is wrong so be it.


stumbler
7 years ago

@lexie123, you are right, the mind/brain is a powerful tool. As is an effective marketing strategy for a product!
I regret that your sales pitch is sadly lacking. You have been generous enough to offer a free trial, but you still try for the hard sales pitch at every opportunity.
I have even tried to provide non-medical advice to you. But you insist on continuing in your existing salespersons guise.
Your presence here is now becoming irksome. So, with all due respect, can I suggest that you return to that stone that you recently crawled from? It would be more dignified to go of your own volition, rather than wait to be forcibly removed.


jman
7 years ago

Given that the NHS are growing large quantities of cannabis as I type this, I would say its a drug worth exploring IF it works. Most western medicine started out as herbal alternative remedies, some became complimentary, bellladonna, and digitalis to name a couple, top anti-rejection drugs were discovered in fungal soil samples.. Does it make them any safe if they are herbal, NO..
I think the only time I’ve smoked weed is passive inhalation at a friends room at uni LOL
Some of the painkillers and anti depression drugs I’ve had are based on our friend the poppy.. All good healthy herbal stuff ya know 😀
The mind IS the most powerful organ, but there are other ways of managing it other than set way of rules set out moneymakers at the end of the day..

I think this calls for a SONG 😀 You ask so many questions, what answers should I choose..!

Lalalala la la la!


Anonymous
7 years ago

I think like for like answers a lot.


cedelle
7 years ago

@lexie123 … Do u have MS? if not … why r u here? because clearly your getting more negative responses than good… so why r u here?


Anonymous
7 years ago

Hi I’m here as I am helping people with MS like someone helped me .


chrisgate
7 years ago

cannabis certainly provide relief from symptoms such as stiffness and muscle pain, it also helps to help a person relax. ALCHOHOL IS FAR MORE DANGEROUS for msers. plus weed wont make you need to pee!


cameron
7 years ago

@lexie123, I echo what @stumbler has said. This site is about emotional support and shared experiences, not guff. I won’t be commenting further but I suspect that many will share my view.


serankin
7 years ago

I have been thinking of trying it, but I do not know anybody these days who can get it (anyone here from Oxfordshire)! I must of turned boring many years ago! Anyway, I may try it in a cake when I can get some, as I gave up smoking years ago. I wonder if that was what all that MS Society cake bake was about then?!


chrisgate
7 years ago

cannabis cakes is a great idea because you will still get all the THC out of it, aswell as there is no tobacco smoke. I myself have increased smoking since my diagnoses. I highly recommend cannabis but it is only meant as a temporary relief. It is proven to help reduce symptoms.


reddivine
7 years ago

@lexie123 – I have to echo @cedelle here………your profile tells me nothing about you. No age, location, picture or reason for joining. Do you or a loved one HAVE MS? If not then you are, I’m sorry, bound to offend some people.
As for the drunk or stoned remarks….well theres a dozen ppl on this thread and so not ALL of us are stoned. Some folks try it because of PAIN, and while I never would, untill you in agony, who can say what we will try??


gav
7 years ago

@reddivine while lexie may just dodge/ignore the questions she can’t answer, I believe she claims she was ‘cured’ of her MS three years ago, she still fails to provide evidence of this.


Anonymous
7 years ago

I might be a little late in a reply to this, but I have to say from exp. with marijuana it helps me tremendously. I do know a bit on the subject, I so know that with the differences between an indica v.s. a sativa may have a large effect on weather the “high” achieved effects the head or the body. Also if you eat it rather than smoke it it tends to effect the body more than the head. And I agree with Chrisgate in that alcohol can not be a good idea but to each their own, i’m no doctor. and if anyone has any question directly related to marijuana don’t be afraid to msg me privately i have some very good resources and etc.


chrisgate
7 years ago

i sometimes buy some cheap cupcake mix and say 3-4 g of cannabis mixed in. Cupcakes are amazing and they made feel so relaxed I almost forgot about symptoms.


splick
7 years ago

I use cannabis in cooking (my wife loves me!)
When I have tried smoking it, I get the mega mushy head but eating it just relaxes me and the pain vanishes for hours.
My consultant recommended that I went to my local town to buy some!! I am on the waiting list for an appointment to see Dr Willy Knotcutt. Dr Willy Notcutt specialises in pain medicine at James Paget Hospital in Great Yarmouth – http://www.painconcern.org.uk/2012/07/pain-articles/cannabis-can-it-be-used-to-treat-pain

There’s still along way to go in the research of cannabis….but I know that all the horrible lower back pain and pains in my legs vanishes with cooked cannabis. I always have some in the house for the particularly bad days….I don’t use it everyday, probably once a week.


andyb
7 years ago

I have heard this same story in a few places now after searching for it online because I have a similar story, I gave up weed after over twenty years of smoking and tried to get fit. That’s when my symptoms presented themselves and I was diagnosed within 18 months of giving up.

I probably had MS already but I feel like it was giving up that allowed the monster out of his room. Perhaps I was self medicating?

I’m still not smoking because it stinks… Although I have heard good things about vaporizers… 🙂


sarah0martin
7 years ago

I have found that building an opinion about Sativex after one Spray is madness. I’ve been using it for 8 months and it has reversed my symptoms massively. For a certain percentage of people, Sativex is a wonder drug. We need more patients and doctors promoting this drug.

2 years ago I couldn’t walk amongst a load of other things. Now I’m almost human and out and about again. Nice to see so many promoting medical cannabis at last.

p.s. you’re mad if you think smoking is medicating. I choose a vaporisor


Anonymous
7 years ago

Can some one possibly explain to me what the ingredients are of this spray called Sativex? I have never heard of it until this post. I am not sure if the canadian government has any viewpoints on it but i would like to find out more.
Sara to your quote ” you’re mad if you think smoking is medicating. I choose a vaporisor” i am not sure wher you get your information but i have not been able to find any proof that the “smoking” of marijuana is harmful in any way. If you know where the plant is coming from and know that it has not had chemicals added to it then your statement does not hold water. And a vaporisor may not burn plant matter but it does burn off the THC so in all reality you are still smoking no matter tool you use.
this is not to cause a debate but i just find what you say to be a little misleading. I value most opinions and hope mine is valued in return.

J.


stumbler
7 years ago

There you go, @Temmerman84 :-
http://www.mstrust.org.uk/information/publications/factsheets/sativex.jsp
You’ll have to check locally for the situation about getting this drug prescribed in Canada.


sarah0martin
7 years ago

I have asthma and and sinus problems and I certainly don’t want any burnt plant matter causing complications.

Every country has a different argument. This is not Canada. And you can get Sativex in Canada.

GW Pharma info. http://www.gwpharm.com/Sativex.aspx

Cannabinoids! Read about them! Your body produces compounds not unlike those found in cannabis. Science investigated why so many sick people favoured cannabis. They discovered the Endocannabinoid system in all of us. They also found out how to indentify certain receptors in the brain (CB1, CB2 etc) and how to use targeted cannabis compounds to treat MS.

Get informed please. Medicine is trying to change.

Cannabinoid System in Neuroprotection, Raphael Mechoulam,PhD


cameron
7 years ago

On a slightly different tack, I was bothered severely by back pain, which was dxd as musculo-skeletal but which at times also felt neurological. It was bad enough to have to stay in bed or be nursing a hot water bottle for hours at a time. I have strong painkillers on permanent prescription (paracetamol + codeine in a bigger dose than you can buy over the counter). I was taking these plus anti-inflammatories two or three days a week. Then, unconnectedly, having read Prof G’s (and posts here) about MS and vitamin D levels I got myself tested. I was found low, almost at the point of ‘severely low’. I went on supplementation and it was only six weeks later when I was renewing my repeat prescription that I realised I didn’t need to renew anti-inflammatories or painkillers, because I had hardly used any in the interim. That was around last August and I now consider my back problem to be reduced by about 80%. I did read that vit D is ‘nature’s painkiller’ and thought it was advertising hype, but I now think it’s exactly that. So – worth a try perhaps instead of weed?


sarah0martin
7 years ago

Here’s a tester vlog I did on my use of Sativex today.

Go, have a go! 🙂


stumbler
7 years ago

Marvellous stuff, @sarah0martin , so, you’re in favour of Sativex!
Poor Trevor. 🙂


bubblesgalore
7 years ago

@sarah0martin.. you were very convincing. am pleased that it has worked well on you… i agree @stumbler.. i giggled when trevor was put in his place….. xx


stumbler
7 years ago

Aaahh! The perils of Vlogging………….!
😆


michaeljohn
7 years ago

Hi Xander
I use the Swank low fat MS diet and pure cannabis (never mix with tobacco because it brings on symptoms). I should be beginning my fourth relapse but I feel good and I’m going on holiday next weekend. Most of the time I feel 90% cured.
Nigel


loulou
7 years ago

Cannabis is supposed to help people that are in pain, I drive alot so no good for me, I dont get any pain just stupid foot drop legs and stiffness, I wouldn’t be without my big glass of vino at night then my two Baclofen pills before x


loulou
7 years ago

my bed time!

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