Last reply 3 months ago
Waiting game?

So after waiting 10month for first nurology appointment January..followed by brain and spine scan February..ive been waiting for next appointment Monday may 4th..just heard thst it’s been cancelled due to unforseen circumstances and I’m back on waiting list to be seen so as possible. I was expecting this due to the current situation so I’ll just keep fingers crossed it won’t be 10 month wait again. At least I’m still on list and that’s all that matters. Hope your all safe. Carole

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stumbler
3 months ago

@carolelawrence , you’ve been diagnosed, so I assume this is to check progression to ascertain which Disease Modifying Therapy (DMT) to offer?

If this is the case, try and see if you can contact your MS Nurse to expedite this. However, your MS Nurse may not be available, having been temporarily redeployed because of Covid-19


Anonymous
3 months ago

I’m really confused with it all the. What are “non” specific liasions? I’ve had letter off GP saying I have 2 non specific liasions on my brain 3mm each and 2 non specific liasions on my spine 3mm each ….then he said this is good. I’ve heard though from my consultants secretary in nurology today..she said they will get me a new appointment asap because my mobility is deteriorating I’ve this numb leg and foot and my right toes..for last 4month..im in pain everyday now and hiddeous night pain every night with cramps thrown in for good measure..but it’s this word non specific…what is it? Oh I’m a tremor with hands person too have been for 40 yrs but last 18months got very bad. Carole.


stumbler
3 months ago

@carolelawrence , don’t get caught up with all this clinical-speak. They like to have their own language. just to confuse us. It makes them feel superior.

You’re fortunate to have a Neuro for your GP. However, I don’t think he is, so he has no qualifications to interpret what has been said.

As far as I’m concerned, a lesion is a lesion – end of. Personally, I’m not bothered if I have one or twenty-one. It’s how they affect me which is what interests me. 😉


Anonymous
3 months ago

OMG you don’t know what relife that has bought too me! . My cousin as fibro but no liasions be it non specific or specific..she said too me fibro dose mot show liasions of any description. I’m dreading being told to go away your imagining it….Ive had 5 weeks of neck and shoulder pain. 18month of hip leg pain and reduced mobility and a year of not being able to do personal hygenie without a fight! As a female I love getting up in a .morning and smartly dressing..hair done and make up to perfection…lets say that again…Struggling to fasten buttons. Struggling to put make up on…unless I’m in an audition for Xmas pantomime then the sqawley make up is fab! Lol the funny walk is a must and by this time weetabix are a con..because they don’t give me woman power! I miss steps coming downstairs most morning and do I care? Not really…i can’t feel it my leg is numb! So if I’m told it’s all in my head then I will think hang on….lets try this again🤣 love to you all this god given precious day my loves. Carole. X

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