Undiagnosed at the moment
Hi :) I was diagnosed with Fibro 12 years ago. Nearly 6 months ago I woke up unable to walk, my legs and back just wouldn't hold up. My hands were numb at times with pins and needles, head felt empty or weird - this had been preceded by months of vertigo, pain, overheating bouts through summer etc. For years I had had right side issues, my head numb on that side, foot dragging, stiffness in face, shoulder and leg. I had a brain scan done which showed demyelination and a need for MRI's and possibly a spinal tap after that. I have been put on a waiting list which is 7 months long (NZ health system!) so still waiting :( It was 3 months before I could walk unaided a little and the only help I have been given is a wheelchair, walker and meds for palsy/pain. I am soooo frustrated and miserable, this group popped up on my Facebook newsfeed so here I am. I can walk a little distance now and drive so have improved but have worked hard to get this far. I guess because I still have no answers if others have experienced this but a quick look through stories shows they have. Thank you :)
Hi 👋 welcome to this group 😀 I have found everyone on here is a great support and it’s great to talk to people that really do understand what your going through...... at the moment you are in what’s called limbo land waiting to find out what’s really going on with your body, it can be very frustrating as it’s a constant waiting game with no rush from the system it’s the same in Scotland. The people on here have so much experience and can help answer your questions Xx
Thank you NiteOwl xx And that's the free health system I guess, hopeless...am pleased to have found the site. I follow Terry Wahl and Pam Bartha for diet stuff so I guess thats why it flicked up. Ta :)