Last reply 3 weeks ago

Ms is such a funny desease to have I use crutches to walk as my right leg is badly affected ive has surgery on my ankle to straighten foot, stop drop foot and waiting surgery on all toes now have clawing on right foot, people say was it worth having the surgery in first place . Well yeh I wouldn’t be able to walk at all without sugery , people are not very aware of the crop that goes on , ive got no balance , memory loss , hands are knumb , odd toilet troubles, headache, depression bad , speach problems alot more , ive started to right my thoughts and feelings down in a diary as I need to stop them getting bunged up in my head , to be honest I do think it helps a bit , does anyone else do this or finds a way of helping them cope ???x

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3 weeks ago

@adele_barrow , it’s a very good strategy, to record these feeling and emotions, especially if you find yourself ruminating over them. It allows you to put them in the metaphorical box and store them away and then get on with life.

Good luck with the surgery.

3 weeks ago

Nine years ago I had back surgery for progressive lumbar scoliosis. The surgeon was not sure about doing it as death was a possible outcome from the 8 hour surgery, however I wanted to walk again so yes definitely worth it! Have had MS for 45 years and I kinda like walking so 3 years ago I had ankle replacement surgery and I can still walk , not well, but thats okay. Now I have knee giving me issues so surgery might be an option .. again but yes it is worth it…to me anyway
I am now 66 but I am not ready to quit yet! I know the time will come when I may be truly disabled but it is,God willing, not today! Best wishes to you !!

3 weeks ago

Hi @adele_barrow, sorry you’ve suffering. Writing is often an amazing was to get those feelings out. You could start to get creative; like write three words down at the end of every day about the sort of day you’ve had/your feelings, and start a collection. Y’know, things like: goodish/bleak/tiring/fun/interesting/happy/tiring and do something with them. Like, collect the words in a jar each day and eventually sort them all out into groups. Or a poem! Or, put them in a wordcloud/tree which you can generate online. Try to keep smiling through… 🙂

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