@kea21 

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kea21

Tysabri

I have been on Tysabri for almost two years now, I said from day one that it wasn't the wonder drug for me? Since last September I have been having low blood pressure, all blood tests and a heart scan are ok? The heart specialist reckons it is a combination of the drug and Neurological Damage??? I have a neurologist appointment on the 20th and looks like I may get moved to a new drug recently approved for funding (ocreluzumab) I guess it can't be any worse? Although I am obviously not a very good druggy! I have Not been the same since coming off the Avonex injections. Since our weather has warmed and having the latest infusion (Friday) I am the worst I have ever been? Dizziness, foggy headed, headaches, No strength and stubborn low blood pressure? And I can hardly walk even around the house, it is so frustrating it makes me angry, frustrated and depressed!
@Nicu_Macsim

dont be depressed, sad... we are here for you. if tysabri dosent make you feel good then you have other drugs to help you, like Ocrevus, Lemtrada, Mavenclad, Mayzet ( depends on where you at). smile (even if you dont have nothing to smie about), breathing, meditation, exercises...can help you fight the depression and your " threat bucket" ( worries, anxiety... etc)

@kea21

Hi Nicu, I am in New Zealand and we don't have access to Lemtrada, Mavenclad or Mayzet? They are to expensive and our Drug funding agency won't fund then, it has only just (October) agreed to fund Ocreluzumab which I maybe going to be put on? It is funded from 1 at December. I used to run around the Mountains hunting deer etc, now I can't even walk to the damn loo some days! Yes I know a lot are in the same boat, but doesn't make it any less depressing! Maybe I have progressed to stage two as my MS Nurse thinks?