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emmy
10 years ago

i tend to get a whole bag of symptoms: my left legs gets really weak and wobbily, i loose sensation in my little fingers and my right hand spasms also get optic nurosis.


Anonymous
10 years ago

I’m kind of similar to you Emmy, and sometimes I can tell things aren’t quite right, but I can’t explain exactly whats wrong!! But yeah, optic neuritis, numbness, weakness, particularly in my left leg, and crappy balance. Yay. Xx


ghada
10 years ago

Hey girls!
oh ok so its not just me then! when would you suggest going for steroid treatment then?? as i have had what you mentioned apart from very wobbly legs..xx


emmy
10 years ago

I tend to call my ms nurse as soon as i start to feel them coming on, she3’ll come out and access me and we’ll decide if i need steroids or not. i think the sooner you can get them the quicker your return to “normal will be”


debbie
10 years ago

I too have the symptoms listed above – along with feeling tired all the time! That for me is the real bummer.

I agree with Emmy. When I feel the symptoms coming on I assess them with my MS nurse. I have had times where my GP felt I should wait and it took longer to “get back to normal” I really value the support I get from my MS nurse who knows how to assess and deal with every scenario I have.


gav
10 years ago

Every time I have a relapse it seems to be a new and unusal recipie for potential disaster =) I’ve had numbness in each of my limps, lack of balance, bladder problems, Optic Neuritis and my favourite, Vertigo! Pretty much everything but chronic pain, and I’m still standing!(if slightly wonkily ;-))


ghada
10 years ago

so the ms nurse should be first contact not GP then?? how do you knwo when you need steroids or not??


gav
10 years ago

You tend to just know (I know, wishy washy answer, but it’s the truth). It’ll depend how hadly the relapse is affecting you, but ultimately it’s your neuro who decides whether you chould get steroids or not.

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