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@Johno 

Last reply

Johno

Tysabri

Hi I recently got diagnosed with MS My Neurologist and MS nurse are pushing me towards the Tysabri drug I have read all the messages regarding the side effects But that aside I am worried about the other effects on the body organs. I am also ahearing that people who come up to their infusion have a real downer experience for about a week to try to get back on it. I am changing my lifestyle as I was a very active 57 year old man Don’t know what to do - go on it or roll the dice!!!   Note: Title amended to correct typo - Admin (Stumbler) :wink:
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@Stumbler
@Stumbler
 

Hi @johno and welcome. Yes, it is a case of balancing up the risks. Tysabri has been used for a few years. Recipients are constantly monitored to mitigate risks. MS is an unpredictable and potentially debilitating condition. Any damage caused may be irreversible. Risks may be mitigated by lifestyle changes, e.g. diet, but there is only anecdotal evidence for this. So, what do you do? Well, that's your call. You just don't want to find yourself in 2/5/10 years, wishing you had decided the other way...............

@Vixen
@Vixen
 

Hello @johno, welcome to Shift. I was diagnosed last year at the ‘more senior’ side of the sliding scale too, so I know what a shocker it is. If your diagnosis is very recent, be fair to yourself and give yourself a little time. The current thought is about ‘hitting it early, fast and hard’ but, given that diagnosis these days tends to cut out the previous experience of years and years of establishing, its important you don’t feel too rushed. I gave myself a month to absorb the diagnosis and consider what this might mean, then two weeks or so to start research. I chose Tecfidera as it fitted in with lifestyle. Even when I made this choice I waitied until I had holiday due so I could prepare myself. Whatever you do, don’t read horror stories on the net, stick to official sites for information. There are lots of tips on Shift if you use the search and key DMT terms, above. This said, if you are being pushed towards Tysabri, this will be because your team have the full insight and facts of your case, which of course, we don’t. Anyways, lots of support on here, whatever you decide. All the best