Treatment
Hi all , I am new to this, but just wondering your experiences accessing DMDs. I have had MS for two and a half years, finally diagnosed a year ago , I was originally diagnosed with Clinically isolated Syndrome. I was told last year that I have an 80% chance of getting it full blown within the next 5 years. I believe I have relapsing and remitting, although never been told this.
I have had 2 terrible relapses in the last 9 months, but am still being refused any treatment. I have had to reduce my work hours due my symptoms and the unpredictability of them and I’m really struggling and now feel I may have to give up Work completely. Has anyone else had this problem?
@trinad , something is obviously wrong somewhere. I fear there might be a communication problem with your Neuro. When was the last time you saw them? A formal diagnosis of MS has to satisfy the McDonald Criteria (https://www.mstrust.org.uk/a-z/mcdonald-criteria) and I'm wondering whether this is where wires may have become crossed?
Hi Thanks for your reply, I last saw them at the beginning of this month as I had a relapse, I have of couple of lesions on my brain picked up in my first scan s couple of years ago, I also had a positive lumbar puncture result, so reading the link you sent me, I believe I should be on some form of treatment to help with the relapses and the intensity of them.