Last reply 2 weeks ago
Tough subject :(

So my wife of 31 years was diagnosed with RRMS in 1995. In that time she has tried many many medications. Nothing has stopped or even slowed her progression into secondary progressive MS. We travelled to Poland 2010 for CCSVI treatment. Still her MS progressed. She has been using a wheelchair now for 15 years. At first she only used when going long distances. Slowly over time she needed it more and more. Now she can no longer stand or even transfer from chair to bed or toilet. She has remained so strong for all these years it really is a testament of her inner strength. Now for the toughest question of all, her bowels are now starting to shut down. There seems to be nothing that helps. Does anyone know of this as a complication of MS? I don’t think there is anything that can help her. Any information would be greatly appreciated. Sorry for dumping all this on my first post but I don’t really have anywhere else to turn!

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


bullman
2 weeks ago

@magnum1 I don’t know what country you are in. In UK I would contact MS Nurse and get referral to bowel nurse. There is lots to help.


magnum1
2 weeks ago

@bullman we are in Canada but having a tough time getting any referrals for specialists with Covid but going to take your advice and try to see a bowel specialist. Thank you.


henrietta
2 weeks ago

@magnum1 I’ve only just been diagnosed and, apart from some constipation and bladder weakness, I’m not (yet) affected on this front. Don’t know if you have watched any of Aaron Boster’s videos on YouTube, but there may be something useful there, not sure. Mostly I wanted to reach out and say hello, and that your wife sounds amazing. Wishing you both all the best


magnum1
2 weeks ago

@henrietta thanks for reaching out and saying hello. I have not seen any of Aaron’s video’s but I will check them out. Thanks for replying to my thread 🙂


vixen
2 weeks ago

Hello @magnum1 and welcome to Shift. It’s lovely that you’ve joined for you both. In the 25 years since your wife was diagnosed, lots has changed in the world of MS. It might be tricky, but see if you can change to a new, perhaps larger neurology department. Sometimes this can be enough to breathe new life – and ideas – into a case. The Aaron Boster videos are great. Never feel bad for posting on here; it’s here to support everyone, including carers, so post away! Al the best 🙂


cheryl1234
2 weeks ago

Hi @magnum1 I was diagnosed in 1999, and now have secondary progressive ms, I found that diet and exercise was better than anything else, I just take vitamin D3.. wish u all the best 😊


stumbler
2 weeks ago

@magnum1 , you may want to look at your wife’s squatting position.

There are schools of thought that having your feet raised creates a more logical position. Check out this product :-

https://www.squattypotty.com/

Other squatting stools are available.


magnum1
2 weeks ago

What a great group. I will take all of this advice and see if we can work it into our daily routine. Thank you for all the kind words. Wishing everyone all the best. Magnum 🙂


nabla_rose_molloy
2 weeks ago

Please, please try regular reflexology. It works wonders. My uncle had it twice to three times a week when staying with us and he could move from his bed to the wheelchair after a few sessions. Good luck and hugs to you both. Xx


mmhhpp
2 weeks ago

I have got spms Constipation is it a big thing! Bowels Don’t move fast enough.

For me it works laxido one sachet day before and micralax the follow morning, it takes less than five minutes

I do this every three or four days

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.