I feel incredibly confused by what has been going on in my body, I was relatively healthy up until about 2 years ago when everything suddenly got much worse. However, I’ve been looking back into my past lately and realizing that I’ve had some of these symptoms for years, but they would happen so infrequently or were so mild I was never taken seriously.
I’m 26 now and have been having pretty severe back pain since high school. This started to get worse in university and afterwards. 2 years ago I started getting trigeminal neuralgia and there was a point where I couldn’t open my mouth due to the pain and after that everything got worse and worse. I experience nerve and other types of pain all over my body and it seems like it’ll flare up in one spot and travel or spread from there. Sometimes my entire body hurts. I’m fatigued more easily, I get crazy night sweats, I can’t get a good night’s sleep and I get randomly nauseated, especially when I get overheated (and I’m usually running really hot or have a chill). I get weird sensations in my body and lately I’ve become more concerned with feeling numbness and tingling, although it’s mild.
I was diagnosed with fibromyalgia by my family doc and trialed like 5 different medications, none of which offered any relief. The biggest success I’ve had is by taking myself to a medical marijuana doctor. I can tell within hours if I’ve forgotten to take my CBD oil, this is the only thing I’ve found that helps besides THC as well.
I feel like every other day I’m googling my symptoms and it’s telling me to look into MS. I’ve researched all these weird joint and immune disorders that have similar symptoms despite knowing I shouldn’t use Google to diagnose myself but I desperately want to know what’s wrong with me. I don’t feel like most medical professionals I’ve dealt with take me seriously. Before the CBD oil I found myself in so much pain I could barely get out of bed. I found myself understanding on a different level why doctor assisted death should be available to those who need it. I’m terrified of getting that bad again or worse.
I don’t know where to start. There’s an MS clinic offered by my city’s hospital but I’m still not completely convinced this isn’t all in my head despite how bad it gets. I feel like the symptoms change day to day if not from morning to night. Which makes it so hard to even explain to people what’s going on with me.
I feel like even if it’s not MS you all are likely to understand my situation of having a million horrible, confusing and changing symptoms. I don’t even know what I’m asking with this post but any advice or anything would be appreciated!
Browse categories and add by clicking on them
You can remove current categories below by clicking the ‘x’.