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@Highlander 

Last reply

Highlander

Thought this might be of interest

This week, the National Institute for Health and Care Excellence (NICE) published draft guidance for clinicians on cannabis for medicinal use. The draft guidance recommends against the use of medicinal cannabis to manage pain and muscle spasms in MS. We’re bitterly disappointed by this, and are concerned people with MS will continue to be denied effective treatment. NICE is consulting on this guidance and we need to hear from you. Share your story Have you tried to access cannabis-based medicines on the NHS? Help us campaign by sharing your story. Share your story → This comes after the law changed last November to allow specialist doctors to prescribe cannabis-based medicines. We know very few people with MS have been able to access them. This needs to change. An important time Over the next month we will be working with people with MS and healthcare professionals to respond to the consultation. This is a real opportunity to make our voice heard. Please share your story. Thank you for your support. Matija Campaigns team MS Society
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@MSMPT69
@MSMPT69
 

Hi there Medicinal cannabis user here and I can certainly share my experiences with you. I was diagnosed in March 2019 and have been totally open with all medical professionals about my use of cannabis. My MS specialist has told me that she will not condone my use but is generally supportive of me continuing to use it. She gave me a lecture about what can be sprayed onto street cannabis and the associated risks but I am able to assure her that everything I use is totally organic and the growers pride themselves on a fully organic product. I want to have a conversation with my doctors about access to medicines like Epidiolex as I am very interested in the use of CBD as well as THC but I have not had this opportunity as yet. I have just started on Ocrevus so my cannabis use is as a complementary medicine and is more about managing day to day symptoms than anything to do with progression but whilst I have used cannabis all of my adult life I truly now see it as more of a medicine than anything else. I feel very strongly that we should have medicinal access to cannabis and have found no other treatment for the pain/spasticity and fatigue that I experience. In trying to manage pain via my GP when I seriously injured my back I ended up addicted to Tramadol and so I know that anything my doctor can prescribe to me currently is opiated and therefore carries serious consequences in terms of dependency. How can it be right that they can prescribe opiates like smarties but won't prescribe cannabis! I would be very happy to be involved if you need MS patients to support the cause.

@merfield
@merfield
 

@highlander, my story (which I think you may know) I’m ppms, in a wh/ch. I pay for a live-in carer as I need one now. I started to get spasms in my legs mainly in the mornings, waking me up very early and the Baclofen suggested didn’t help so assuming the NHS would expect me to fund it I ordered it online - CBD oil 500. It came and I used it as directed.i told my neuro it had alleviated the spasms, he asked where I got it online, I told him He raised his eyes in disapproval but did not suggest a prescription. It’s just shy of £30 which lasts about 18 days. As the spasms came every minute and a half - too frequent to tolerate- I do feel we MSers should have support from the NHS.