@andrew4612 

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andrew4612

The poor relation

Hi I am really pleased to see ocrevus starting to be prescribed , my bone is that I have PPMS and to date all I’ve had is sympathy, Ive requested this drug as our friends at NICE have granted a licence to use on PPMS , the first and only drug with evidence proven to benefit the latter. The drug is now going through its 90 day consultation period at present, Ive requested this drug but it is not that simple, I have to meet a lot of criteria before being prescribed this treatment, statics are saying that about 9 to 10 thousand people have this form of MS , yet only 3500 will only receive it. Hardly fair is it?,but that’s life I keep being told that new treatments are being developed, I can’t see them. I feel it’s down to money and there’s not enough profit for the drugs companies to invest in PPMS, any way if they did we’d be in the same situation as ocrevus to dear ! Please note I have a positive outlook just fed up with bulls**t
@Ron_S_Perrin

From my research HSCT seems to be the best treatment.

@smack

Contact the drug company. If you are dx’ed with MS you should qualify. Maybe find new doctor. Something wrong here.