@RitaM 

Last reply

RitaM

Thank you for all the insights

Hello this is my first post, although I have been following the forum for several months. I was diagnosed in January and my MS nurse recommended the site. I want to say thank you to you all for all the support you give to each other and new people like me and loads of information that I have picked up from here. Especially during the early days of the COVID pandemic, it was invaluable reading Dominic S's posts and links to Prof Gavanoni's sites. I have also really enjoyed watching many of Aaron Bosters's videos and the MS reporters' interviews. I am 63 and fist suspected MS almost 10 years ago but had problems getting referred back to Neurology after the first investigations were inconclusive in 2012. Unfortunately after several falls and worsening mobility, I did finally get the referral. I am waiting to hear the type I have, although strongly suspect it's SPMS. I'm taking a combination of gabapentin and baclofen for my stiff legs but they don't seem to be helping. If SPMS is confirmed I'm going to ask about participating in a clinical trial if there are any underway at the moment for SPMS. Is anyone else involved in an SPMS study?
@watsoncraig

Hi @ritam 👋 I have progressive but mine is PP, I hope you find out soon which type you have but remember you are still you and forget the word “can’t”, you just “don’t” or “no longer do” certain things. Stay positive and keep smiling 😃

@Vixen

Hello @ritam, welcome to Shift. Glad that you have already found it useful. Is the research you've been doing on Siponimod? If you enjoy research, have a look at remyelination. I believe this offers the greatest hope for us all on the horizon. Yes, the Boster/Giovanoni/@dominics combo was a massive support through Covid as Dr G was liaising with his Italian counterparts and getting the last advice on how Covid was affecting patients with MS in Italy, so this was priceless info. I hope that you have lots of support around you. Keep posting and stay connected with your new MS buddies!