Hello this is my first post, although I have been following the forum for several months. I was diagnosed in January and my MS nurse recommended the site. I want to say thank you to you all for all the support you give to each other and new people like me and loads of information that I have picked up from here.
Especially during the early days of the COVID pandemic, it was invaluable reading Dominic S’s posts and links to Prof Gavanoni’s sites. I have also really enjoyed watching many of Aaron Bosters’s videos and the MS reporters’ interviews.
I am 63 and fist suspected MS almost 10 years ago but had problems getting referred back to Neurology after the first investigations were inconclusive in 2012. Unfortunately after several falls and worsening mobility, I did finally get the referral. I am waiting to hear the type I have, although strongly suspect it’s SPMS. I’m taking a combination of gabapentin and baclofen for my stiff legs but they don’t seem to be helping. If SPMS is confirmed I’m going to ask about participating in a clinical trial if there are any underway at the moment for SPMS. Is anyone else involved in an SPMS study?
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