Last reply 1 month ago
Tecfidera to Beta interferon?

Hi All

It looks like my last rounds of blood tests has shown some abnormalties and my blood count has continued to drop to below “safe” limits for being on Tecfidera. I have been doing well taking it for the last three years and have had a letter from the hospital inviting me for an appointment. The letter has a refernece number which includes the words Beta Interferon which has got me thinking that they are looking at moving me onto some other drug. I will be dissapointed if they want to move me onto an injectable as I personally feel it would be a backwards step.

I have just recovered from a bugger of a relapse which caused issues with my legs and mobility. I haven’t recieved a reply yet from my MS nurse so doubt they are aware of the relapse which may change the choice of drugs

Can I ask those who have moved from Tecfidera, what DMD have you been moved onto and what would be a suitable drug of a simillar effectivness to move onto?

Thanks

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highlander
1 month ago

@ruggermad
I’m on Tec at the moment I’ve been told that after a year I would be put on an infusion the likes of Ocrevus.
Unless you have a medical reason why, then up the potency of the drug don’t lower it.
Comes across as a quick fix to me.
Hope you get some answers soon.


stumbler
1 month ago

@ruggermad , this may help you :-

https://www.mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid

You can clearly see that Betaferon is a retrograde move and how the other DMTs rate.


ruggermad
1 month ago

@highlander @stumbler
Hello, thanks for the replies. Yes my concern is that the healthcare trust I am under are on a cost reduction exercise and are using the low bloods as an excuse to pull the Tec’. I might be wrong though and I guess I will have to wait until the appointment and see what they say.

I will go with ammunition though and challenge any retrograde Tom Foolery


highlander
1 month ago

@ruggermad
I’m not sure that even the NHS would stoop that low, but giving you something that they have a moderate amount of knowledge about, as it’s so old tried and tested seems to be more realistic of certain doctors.
I wouldn’t put that past them.
Just see what they say…..
Wish you luck 😀


rogersouthall
1 month ago

I was on Tecfidera and like you my blood counts were affected and I contracted the JC virus, at present I take CBD oil but seeing the consultant in October to view a new drug, my monthly blog I write about the issues http://www.wholesorts.com I wish you good luck

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