Symptoms - Seeking some advice
Concerned I have MS, doctors have said I am fine, I started having vision problems about a year ago after a head injury. Since then I have floaters, have needed to get glasses (had perfect vision before), pain when looking around, some hearing trouble on my right side (tinnitus, but I also go to a lot of concerts). I also have intermittent episodes of numbness isolated to one toe or both of my kneecaps as weird as this sounds, and as I sit here today I feel like my legs feel off and tingly (this is new) after having a kneecap episode last night. I am a 25 year old male, am in grad school and do not feel all that sharp cognitively, I have ADHD and take vyvanse for that. I also work full-time as an accountant. Have not really noticed any body weakness. I had an MRI about 9 months ago with and without contrast and they stated I had no lesions, but have had really bad instances of eye pain flare up since. The neuro-opthamologist stated it's due to anxiety after my head injury (but this was immediately after and I don't know how fast nerve damage appears after injury), or how anxiety would require me to wear glasses full-time. I had none of these issues prior to the injury and vision was significantly impacted immediately after and is consistent with optic neuritis. I never do not have discomfort when looking around and one eye is worse than the other. I am a former college athlete and have had around 5 concussions, also include some recreational drug use (I know, no bueno) - so my head has been through a lot (Still was able to obtain a 4.0 despite this in my Master's Program this year in school while working full-time, but not saying I don't have a general "fogginess" and I feel I have memory issues, anyone can get an A in online college courses). I have been spending hand over fist in doctors appointments, MRI's, brain supplements, glasses/contacts, hearing appointments, ect., I keep being told I have anxiety about it because obviously I know somethings off, but I do not have anxiety. Been a terrible year since my most recent head injury, just lost my mom suddenly, losing my vision, have a lot going on, and starting to get depressed about it. All vision doctors say it's from staring at a computer all day when I literally lost my vision overnight. Just scheduled another neuro-opthamology appointment and just submitted for a callback from a neurologist, again, so more $$$ and I know they'll just refer me to another MRI, so even more $$$ that I don't have and still haven't paid off all my last visits, but I want to know what's going on. Do I sound crazy?
Hello, Just made this account! First time ever typing something. I have had Ms for a litter over a year now, I had no idea what Ms was until o was in hospital with terrible eye pain and losing my vision over night. I had the numbness and tingly feeling and ended up losing the ability to walk straight during that time. You don’t sound crazy! Sometimes when it comes to yourself if you know something is wrong you fight to get your answers! I was stupid and ignored all the red flags until it was too late. I’m sorry for all the troubles you have been experiencing I do hope it becomes easy for you! I hope you don’t mind me asking but have you ever been offered a lumbar puncture? That’s what I had done and it 100% confirmed that I have RRMS. They told me that the lumbar puncture is the one test to confirm Ms suspicions. Although that is what I had been told I’m sure there must be other tests now! Sorry about your mother, my sincerest condolences x Take care!
@gihan I have not yet had a lumbar puncture this is my first time reaching out to neurologists again after I have had continuing symptoms and now the concern with the numbness in my legs which is causing my current freak out mentality haha. All I had was a MRI with and without contrast and they stated I had no lesions and looked healthy, but these same doctors didn't really take me seriously in the first place and just said I "seemed fine." Not saying I don't think they looked at my MRI hard enough, but I just have concerns about it. I still have not seen a doctor that sympathized and confirmed any of my symptoms, I keep getting the "you have anxiety" or have been through a traumatic event and am coming up with symptoms. The numbness and tingling I have is new, and the eye pain has been consistent for the past year with flare-ups getting worse, its also so hard to wake up in the morning. My eye doctors seem to skim over my eye pain concerns as well, so I am seeking my 3rd eye doctor in the past year. Thank you for listening! It sounds like we have had similar symptoms, I just want some kind of reassurance so I am trying to see a neurologist who specializes in MS and go from there... Because every time I type in what my symptoms with anything are all I get is MS.. MS.. MS...