Symptoms I’ve faced
I was at work, my left arm and leg went numb. I went to ER was in 3 different times. They did an MRI and a spinal tap them I was diagnosed with MS. It’s been 5 months I deal with a lot of fatigue, stiffness in my arm and leg, a lot of pain. My brain doesn’t work like it used to, It’s hard to recall words and just this morning I kept forgetting where I was driving to. Scary to me. I don’t feel like my doctor is listening to me when I say I’m in pain. It’s hard to fine the correct meds to work with me. I try and stay positive and I do most of the time but when I’m in pain it’s hard to stay positive. I have more responsibility having my daughter back in my life, trying to find the balance and courage to say no when I need to is difficult also. Thanks for having me here a appreciate the support. Thank you. Hope everyone has a blessed day.
May I ask who’s treating your MS? Like a neurologist or MS specialist? I was also diagnosed in the ER and continued seeing the neuro who diagnosed me at the hospital. I loved her, but a month later I had a bad relapse so she referred me to a MS specialist and they understand MS medications a bit more. Pain was my number one issue when I was diagnosed. I had bad nerve pain, spasticity, and neck and back pain. I’ve tried a bunch of nerve pain meds and lyrica has helped me the most and amitriptyline, but I don’t like the side effects of amitriptyline so I stopped that one. Baclofen helps my spasticity and stiffness which I don’t get often anymore so I rarely take it and I see a pain specialist for the back and neck pain and they give me pain killers which I don’t need as often anymore. I remember I could barely get up and get dressed because I was so stiff and in so much pain so I’d have to take an oxycodone just to be able to get up and do anything. Thankfully a lot of my symptoms have settled or disappeared since starting treatment for my MS, but it took some time. Have you started a DMT yet? Also, I was in physical therapy for a year and that helped with my pain issues as well. I hope you start feeling better!
Also, have they given you anything to help with the fatigue? There’s lots of different medications for it. I was exhausted and tired from the second I woke up and had trouble sleeping. I was put on amantadine which worked really well, but gave me severe dry mouth so now I’m on adderall and not only does it help the fatigue, but also my focus. And I sleep so much better at night the days I take it. He originally wanted to give me provigil/nuvigil which are common MS fatigue meds, but my insurance wouldn’t approve.