@SM050 

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SM050

Starting Ocrevus

Hey everybody, Learned that the tecfidera I was on wasn't doing too much as I have three new lesions on my MRI I had in October. My neurologist recommended starting ocrevus. I'm just wondering how everyone found the ocrevus infusions. Also wondering what peoples experience was with the bridging program they offer as my income definitely can't afford $44 000 infusions and my insurance won't cover it (I live in Canada). I'm really hoping the pharmaceutical company will bridge me so I can get this ball rolling.
@Mlgilber1

Hey @sm050! I started Ocrevus in October. So far it’s been a good experience. I only had slight infusion reactions during the first half, but none the second half. I got an itchy scalp, but they took care of it right away with more Benadryl. I don’t know if it’s slowing down progression yet. I have my first MRI since starting next month, but even then it maybe too early to tell. I do feel so much better since starting and a lot of my MS symptoms have lessened tremendously or even disappeared. Fatigue has lessened, no more cog fog, no more swallowing problems, better balance, and many other things. I was using a walker before I started, but haven’t had to since 2 weeks after my infusion. I’m also much faster when I walk. I don’t live in Canada so I’m not sure about bridging the gap. I’m in the US and I’m very grateful my insurance covers it, but I know most peoples don’t cover it all the way so I believe it’s the drug company Genentech that has the copay assistance program and I know they really work with the patients. I’m on a Facebook group for Ocrevus and most only pay a $10 to usually a $40 max copay for the infusion thru them. If you have any questions please feel free to ask. Best of luck!

@Stumbler

@sm050 , the MS Society may be able to advise :- https://mssociety.ca/