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highlander
7 months ago

@stumbler
My old nuero doesn’t agree with any of that….. I just have MS nothing more, nothing less just MS….. hence I’ve basically sacked him.
I’ll let you know next week what my new MS specialist consultant say’s next week.
I’m not sure what to expect but…..


itsmewithms
7 months ago

Thanks- good summary and could be helpful to share with friends and family that really don’t get it 😉 pretty much what my Neuro and those at Mayo say. So I guess I don’t have to sack them ;-0

@highlander good luck next week and hope you find care that is a bit more supportive and knowledgeable…

And- from the US – Happy Thanksgiving 😉 we will be eating all day…I’m starting at about noon…then shopping and the Christmas holiday season starts tomorrow


highlander
7 months ago

@itsmewithms
Enjoy your day……


highlander
7 months ago

@stumbler
A word of caution around pushing for a DX with SPMS…
The general opinion with most nuerologists is stay branded as RRMS for as long as you can.
Even if you know and they know you have moved to SPMS….. don’t let the powers that be get wind of it.
They’ll insist you come off DMTs even though they maybe slowing things down.
Keep it your little secret….
Let’s hope Sipinimod gets the green light soon.


stumbler
7 months ago

@highlander , you are so right. There are some Neuros who are really on our side in this struggle


vixen
7 months ago

Well, I read the article and am still just as confused about what SPMS is. The 7 signs of SPMS could also be the same signs of RRMS. Mind you, my journey up to and including diagnosis doesn’t bear any resemblance to anything I’ve read about the MS journey either, so what do I know? On a brighter note, it’s Election Day. Hooray! Not……😉


merfield
7 months ago

@stumbler, I’ve yet to see an article on us primaries- helpful or otherwise.xx


stumbler
7 months ago

merfield
7 months ago

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