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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@CHARLST0N 

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CHARLST0N

Saying Hello

Hi all, I am seriously new to all of this, My RRMS journey has been a whirlwind. I had the MRI and got diagnosed literally overnight. Multiple MS occurences all at once. After a huge course of steriods Methylprednisolone 1000mg 5 days. My flares have calmed down. Not gone away, I my hands are numb and constant pain. I have an "MS Hug" from my chest to my toes with a tingling pain. No balance I am falling all the time "bodily functions" are hit and miss alot. My right side of my face is numb? My back is shot :( Thats the main bits. Not having a moan no o point :) I put all of this to ask if anyone has suggestions? Also I am going onto Mavenclad and I pray it helps, the pain is not fun. Blessings to all, MS is not fun. It has been mindblowing. Charlston
4
@ItsMewithMS
@ItsMewithMS
 

Hi- At this site you will find many that will relate to your story! but your journey seems to be on fast forward! Many people (literally) stumble around for months or years before they are diagnosed and receive any treatment. The earlier it is understood and treatment can start and lifestyle changes can be made the better the outcome. If you click any of the tags below your post you will find other posts with those tags or you can use the magnifying glass in the upper left to find more. Using this search works amazingly well. The upper right has a few icons to explore as well. You can "friend" someone to exchange personal messages. I often refer people to the Aaron Boster You Tube site for more information on a large variety of topics. He has reviewed Mavenclad and you can hear what he thinks of that treatment or use your tag above to find other posts on it. It is not one I have experience with. This is his segment for the Newly Diagnosed https://www.youtube.com/watch?v=wvQXygHtYzc&t=7s Good luck- Laura

@Underdog
@Underdog
 

Hello @charlst0n Have you been given your full MS diagnosis yet? I only ask as the neuro I saw first was reluctant to give me a concrete DX until I fulfilled the McDonalds criteria. It was a bit of a nightmare and took about 18 months start to finish. He started off by saying to me " it looks like you have MS" then the next time we met he classed it as "probable MS" and then after a further relapse and MRI he finally diagnosed me. The whole process drove me mad, turned me into a nervous wreck........... If you have been given your diagnosis and have had the "letter" sent to your GP then at least you can start moving forward and get yourself onto some treatment e.g. DMD. As for any symptoms which you are witnessing now, these will hopefully pass (sort of) with time. Time and patience will become your friend and you will learn how to adapt and manage the MonSter.......... All the best