Saying 1st hello!!!
I was diagnosed with MS in June of 2018. According to my tests I've had it for over 2 years. No lesions on my spine, however one pretty close to it. My neurologist recommended Ocrevus infusions which I began on Late November 2018. I go for my 1st full infusion On April 26th this year. The only side effect I had was a horrible mind blowing migraine which had me in the ER on morphine that's how bad. I don't think it's made much of a difference. I'm giving it one more year as per the Dr's that's what they need to see if it will slow the progression. My symptoms are slowly getting worse. Hands and feet tingling, weakness, blurry vision, headaches, brain fog and sensory issues, swallowing issues, pain all over and prickly feeling fatigue. Walking long distances getting up from a seated position all are a problem. I still work part time, it's really hard. I'm trying to seek disability. On top of all of this I have no thyroid. So both I am combating at the same time. I'm glad there is this group as I'm eating lots of support
Hello @aaronsgurl, welcome to Shift, which is especially great for the newly diagnosed. Ocrevus has only recently been approved for RRMS but not PPMS in the U.K. Like other DMDs, the purpose is to slow progression and limit the impact of relapses. If you use the search button on this site for Ocrevus, you will see other posts on in. Some have started in the U.K. great that you’re still working, what do you do? For your next infusion, they might think about slowing down the infusion and that might reduce your headache? Keep fighting the good fight! X
Hi @aaronsgurl , you are most welcome. To one extent or another, we're all in the same boat. We just have to ensure we have a good cruise! 🚢