Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.

A friend of mine, actually my spouse’s wife, just had her MS upgraded from RRMS to SPMS by our Neurologist as soon as she walked into his office she said.


john_barry
1 week ago

It depends on your capacity to do things, do you notice things you are no capable of? For me the progress has been gradual, sort of like ageing on fast forward.


calnffc
1 week ago

Thanks I will email my nurse,wouldn’t say I’ve noticed things that no longer capable of. It’s just that I’ve only had 1 relapse in the last 6 years and noticed I’m finding it difficult to run or go for a long walk now as my right foot drags.


calnffc
1 week ago

Just a few symptoms lately seems to have got worse and are there more often, like bladder/itching/tingling which as lead to me asking about SPMS.


calnffc
1 week ago

I played football today for the first time in years and really struggled 🙁 couldnt jog at all without my right foot dragging. The last 2 relapses I had was a similar feeling to this but now it seems to be constant and get it after walking 20 minute or so.


john_barry
1 week ago

That foot dragging sounds like what I was doing 5 years or so after I was Dx’ed. The bladder battles started a few yrs later.


armanda_dickson
6 days ago

This could be another relapse. Please get it looked at, before there’s no going back :/


calnffc
6 days ago

It’s been going on for a while now though notice it when walking for over 20minutes ish,I’ve emailed my nurse not heard anything though, just wonder if could get an appointment with my neurologist if I rang up


itsmewithms
6 days ago

I was initially Dx RRMS in 2005 and then a few years ago my neuro started to consider me more SPMS. This is because I continue to have increasing progression, very gradually and without any major relapses. This is both good and bad.

At least I have more consistency in life. I don’t worry so much about all of a sudden, one day, having a major issues. On the other hand I won’t bounce back out of the symptom quickly either on it’s own or using steroids to hasten recovery. I feel like I am on a gradual slope downwards.

I encourage you to watch Dr Boster’s videos on SPMS and also pay attention to the “leaky pool” model to understand progression-

Hope that helps-

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.