@ncm22 

Last reply

ncm22

RRMS TO SPMS

Hi, I was just thinking they say rrms progresses to spms. And it usually is 10 to 15 years after being diagnosed. I would like to know other peoples experiences, if they would like to share. I have been diagnosed since 2010 with rrms, but had symptoms since 2007. Main symptoms numbness from waist down on movement since 2007. How would you know you have gone from rrms to spms ??? Thanks for any replies.
@calNFFC

Hi, I asked the same question on here just a few weeks ago as I've started to feel worse and also been diagnosed for 10 years or so now,this video posted helped me understand it more. https://youtu.be/KcRWaOjOL2I

@Highlander

@ncm22 Speaking from personal experience..... Your neurologist will have a pretty good idea of when it may have changed to SPMS but they will insist you're still RRMS.... The reason being that once your diagnosed as SPMS there are no DMTs licenced for SPMS in the UK. And the powers that be could stop you having anything. So until one is licensed keep it an unspoken secret. As my nuero told me, your arms are still working....who knows what might happen if you stop talking them. So I left it at that. Our little secret.