Rrms to spms
Hi all, i had my neuro appointment today. I have now transitioned to spms. They will stop fingolimod. I have been having that feeling for a while. I am really sad and mainly really scared about the speed of the decline. I was diagnosed in 2010 but i reallistic speaking had only 5 years until 2 years ago when the decline turn quick.
My only hope is to wish this decline stops but i doubt so.
Is there anybody out there with spms?
They offer to join the statin trial in london, a baclofen pump, and avonex if i am entitle after mri. But i dont know how efficient all this can be. I am a bit tired of drugs that promise a lot but at the end of the day do nothing. Nothing can stop this s... ms.
Sorry for the rant but i am feeling not very well atm.....i need to get it out.....
Do a google search for cladribine4ms. It's kind of a program at Barts in London. Send Dr. Schmierer an email. You still need a DMT to slow things down.
@mmhhpp I am so sorry to hear about the diagnosis, did they say what contributed to the conclusion you are now SP? My Neuro judged it from what I told him! MS has an underlying disease progression regardless, some it will be more apparent than others, I was diagnosed in 2003, didn't go on any medication until 2014 but noticed my decline was far more obvious to me from around 2010. I got high dose statins from my doctor to try but they made no difference, and carry their own health risk, what drug doesn't, but stopped as they also made me feel unwell You know my personal preference on the best treatment option. Take care, Barry