@JeanMSweet 

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JeanMSweet

RMRLMS

I have had MS for about 45 years. At my age they will not treat the MS or its symptoms. Does anyone else have this problem? If so what did you do about it?
@ItsMewithMS

Interesting that you have RRMS for 45 years and it hasn't progressed to SPMS and you haven't had any DMTs through that entire period? To me that is pretty amazing but there isn't enough in your profile to understand how you are doing. I went out to the Canada MS Society webpage and like it better than the US one ;-) I may surf there for awhile. They may have ideas for you and I see resources and meetings that may be in yous area? when I put "Canada MS Advocates" into Google I get some hits...maybe something like this group- have you tried" https://mssociety.ca/support-services/programs-and-services/203/advocacy Looking at the range of issues brought up by people in this forum and covered in the various publications I have been surfing I have begun to make new requests of my Neuro and he has obliged. At this point my MS is a fact and won't go away. I will be moving from Rebif to Ocrevus as it is approved for SPMS which I am transitioning to. I have symptoms affecting my gait and balance. The issues especially affect my right leg. I have spastacity and spasms primarily. So I have requested- and been granted- PT sessions to work on strength and balance. Go twice weekly to a local PT for sessions and work out at least once a day at home on the exercises he prescribes. Sleep drugs (Ambien) as lack of sleep worsens MS so I told my Neuro it was in his realm to help me manage symptoms. Not crazy about this one and actually find Tylenol PM to work as well and it is over the counter here. Gralise (initially given gabapentin) to help with spasms and spastacity. I know there are other drugs specific for Spastacity but am working with just this one initially Ocrevus-approved to start in two weeks...fingers crossed AFO- custom orthodics in my shoes and in addition a brace that helps my foot stay level as it moves forward to prevent stumbles/falls Depending on how Ocrevus goes I may also ask for a FES device to help with foot drop. There are also TENS and electrical muscle stimulation that people say helps. Check out Terry Wahl and what she has done and promotes. I'm not ready for the whole Wahl protocol ;-) but am looking at what she has done like Novantrone, the electrical stimulation and the diet changes.

@Vixen

Hello @jeanm-sweet, how often to you get monitored, or see a neuro? I can’t imagine age being a barrier to having treatments or medication. For people being diagnosed nowadays, life is very different. But that doesn’t mean you don’t deserve the same level of attention and care. 😊