So I had the varicella vaccine 5weeks ago and the previous on 6weeks before that.
Well first dose was okay. Definitely had a small flare of symptoms a few days.
But second time round. Straight away very unwell. (The nurse isbbejgn very careful as to what she’s saying so that really worries me that they’re just pushing towards starting the next DMD rather than helping much with the issues).
After a week on time come a flair. Drop foot both feet, gladly inahve enough energy to atleast lift my right leg when I walk(most days not all) where I can’t lift my left at all when I walk.
Fatigue is most definitely through the roof, days spent just in a haze of pain trying to stay awake. (My baby sister kept commenting on my dropping face while I was fighting a fatigue crash). Also headaches are most definitely ruining me much more the past few weeks?
My mental health went through the floor, mood swings through the roof and just struggling generally. I spoke to my psyc two weeks ago and she was certain it wasn’t actually my normal mental health and certainly more likely ms related.
And worst of all spasm attacks. I’ve had them for years but not ally I’d only have a handful a year. Compaired with the past 4weeks where I’m having them every day if I’m lucky I get a day in-between. Had two back to back on Wednesday night. One right torso and shoulder then the single worst one I’ve ever had. My neck.
We tried to up my Baclofen but it made zero difference to these attacks…
Confused because nurse put in a referal to physio but she said I was lower body spasticity… When I never even mentioned my legs once cause it’s all my my upper body majority of the time. Compaired with my big standard spasms which are everywhere.
It took me two weeks before nurse was available (last Monday)… So last week we were trying the upped dose of baclofen, and she called on friday, nae luck. So that’s why she’s sent in a physio referal.
They’ve got me in to finally start Gilenya next Monday. It seems they don’t want to slow down to get this ‘flair’ (I’d say it’s obviously a relapse at this point) under control.
I’m most definitely feeling very lost right now. Not that I ever feel not lost these days.
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