We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2024 Shift.ms

@shellybelly 

Last reply

shellybelly

Random symptoms

Hi everyone , I am new to this group. I am currently waiting to see a neurologist which I have been told could take between 6 months to a year . Ridiculous I know :( Since October last year I have been experiencing a multitude of various things happening to my body. I have had x3 episodes of approx 30 min body shaking, twitches, the odd spasm. I have left sided weakness( tingling, weird sensation feeling) . Sharp pain on and off in my right eye accompanied by nerve pain on the face that side . My legs very frequently feel like jelly and I feel at times after about 15 mins dog walking that it’s my limit they feel totally fatigued which isn’t like me. I have much less almost sudden strength in both my arms and legs . The symptoms aren’t daily and vary from day to day . They usually last a few days although with my legs it is becoming almost a daily thing. I have been back to the G.P. And they don’t deem it as urgent and have just said keep a diary !!! Along with this my processing ( working memory) has become very bad and I’ve started to wake in the night with tingling or this funny sensation usually down the left side of my body . Sorry for the long post I’m just unsure whether it is MS or whether any one else can relate to it. I am not a worrier and take the attitude that whatever it is I will deal with it , it’s just that I seem to have sooo many different symptoms I’m not sure . Thanks in advance for taking the time to read my post Wishing you all a blessed day 🌞🌞🌞
7
@Stumbler
@Stumbler
 

Hi @shellybelly and welcome. Your tale will resonate with a fair few of us. First things first, yes, maintain a symptom diary. It will allow you to create a short, concise summary for any future appointments. Your symptoms are associated with MS. However, they are also symptomatic of various conditions from a simple vitamin deficiency through to very serious conditions. This is why MS is notoriously difficult to diagnose. Your Doctor's attitude is most unwelcome. Perhaps they were having a bad day. But ,at least you have a referral to Neurology. I appreciate that there is a long waiting time for Neurology. They're a very busy department. If finances permit, a private consultation would speed up the process. After the initial appointment, you could move back to their NHS list

@ItsMewithMS
@ItsMewithMS
 

I agree with stumbler above even though you seem frustrated with the "keep a diary" advice...but it could become very important as if, when you finally get to a neurologist, they see MS symptoms but declare you "CIS" clinically isolated symptom..so basically that you have just experienced one symptom so they won't start treatment. If you can document enough maybe this won't happen? I'm not in your health care system but think it could help. And- what you describe as your frustration - being able to get into a Neurologist isn't an issue we typically have in the US...if we have insurance we can get diagnosed and if our insurance will approve it we can get treatment. Not sure which is better? But none of the systems are perfect for us- that is certain! Good luck and do all you can...if you do have MS there is much you can do to improve your situation like exercise, get your sleep, avoid stress, eat right, don't smoke, etc. the basic advice for better health for us all ;-) You can also learn more about MS for your own sake but also to be an advocate - it never hurts to know as much as you can - I like Dr Boster's channel for learning more about MS and also the MS Societies of the various countries https://www.youtube.com/channel/UCkQopiiFbAo0zS_9BmRF3Bg