Interesting. I haven't heard of this one. When, after several years of being treated for MS, I had lesions on my spine they were concerned that I actually had Devics syndrome so sent me in for blood tests that confirmed that I do have MS vs that. I didn't think things could be worse but apparently they could be if I had that ;-o so good thing. I assume you have had MRIs of brain and spine and they see lesions although apparently for ADEM they will see them as well but over time they change? This article discussed using MRIs to distinguish the two...or maybe time is need as well? It is always a good idea to understand and push back (in a totally respectful way ;-0 ) our diagnosis and treatment. https://my.clevelandclinic.org/health/diseases/14266-acute-disseminated-encephalomyelitis-adem/diagnosis-and-tests Good luck! Laura

@keepsmyelin99 Hello again, okay so you are from scotland and I would assume you have had the similar tests as me. I got a letter through the other week saying my test for NMO was neg and the blood tests for MOG antibodies, so of I course I was like what’s that, went on to google and found an article that included ADEM in this MOG testing. This was also all negative for me but I would assume they have tested you for that. No harm in asking I am like you I want a complete breakdown of what’s been done and what else it could be. Neurotoxins though.. how do you get exposed to them? I’ll probably google this as soon as I’ve finished this message 😄