Last reply 6 months ago
Pay no heed !! 😳

Since Saturday I have been suffering from dizziness and nausea every time I stand up or try and do anything. I had vertigo about 10yrs ago so think this is similar.
Also, for over a week now I have found it increasingly difficult to find the right words when speaking and have found myself spurting out completely the wrong word with increased frequency to the amusement of others and although I try and laugh it off the frustration is showing.

Yesterday I found myself unable to read out the correct numbers from my debit card when renewing my car insurance and my speech was also slurred.

I’ve had very painful spasms and cramping in my legs and was unable to use my right leg after my bath but this I blamed obviously on the heat. That being said it lasted intermittently through the night even after I was well cooled down and I’m still having occasional problems.

I have also been suffering from horrendous increased fatigue probably since late June and really don’t know what to do.

My neurologist only wants to know about clinically significant events as he calls them.. ie complete numbness that travels down (or up) ..or similar, and said “pay no heed” to the other symptoms” 🙄

Easy for him to say. I’d love to hear your opinions.

Thanks all. 🙃

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6 months ago

This sounds like something you should share and is significant. One relapse I had involved mainly speech. For example I found I couldn’t say “pretty, pretty kitty”. Now that is something that isn’t very critical to say ;-0 but needing to say numbers is! It could be dangerous not to be able to say them to emergency people to give like a house number or address!

My neuro seems to act very quickly whenever my symptoms are new and/or impact my gait, speech or vision. Those he takes pretty seriously- hopefully yours will too.

6 months ago

Thank you, I think I just needed a little encouragement to give me confidence to contact them again after my last discussion with my neurologist. 🙄
You are so lucky to have found your caring neurologist.

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