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chantals
4 weeks ago

That sucks. It’s okay to not be okay. That’s what I tell myself on bad days.


kelly_seares
4 weeks ago

Thank you. I was in loads of pain today and threw a chair across the kitchen and it scared me because I’m not like that x


chantals
4 weeks ago

I know that feeling trust me. Pain is my thing on really bad days. I feel like I am being electrocuted. I try to ride it out when it happens. I know it will pass. What works for me is that I often try to do something I would normally enjoy, especially at night, to preoccupy my mind. I listen to music, listen to podcasts & audiobooks. I do light yoga. I am also using a Tens machine. It gives me a tingling feeling in the painful areas. It’s a different feeling than the MS pain & that’s nice. It still sucks though but it keeps me from banging the walls ; )


kelly_seares
4 weeks ago

Thank you that’s a good idea. I love listening to music. I’ve never got that mad before. I’m just so fed up of being in pain every day.


chantals
4 weeks ago

I really get that. It’s okay to feel that way. I believe it is a natural part of the physical and emotional rollercoaster. Our emotions tend to get out one way or the other. I have beaten up a pillow once. ; ) Now I channel my frustration through strength training (never ever thought I would like it) and I get my ‘crazy’ out in improv theatre. I also journal a lot to collect my thoughts and put things in perspective. I am off to bed now. I hope you have a good night. Take care!


kelly_seares
4 weeks ago

Thank you so much x


chantals
4 weeks ago

Thank you too! X


stumbler
4 weeks ago

@kelly_seares , you’ve probably made a good turn here, as you’ve already found out.

Pain is an annoying symptom, although attacking a chair isn’t a medically proved remedy! No-one should have to suffer pain these days, but it’s important to understand the types of pain that we can get. The following might help you to understand :-

https://www.mstrust.org.uk/a-z/pain

You should have been assigned an MS Nurse when you were first diagnosed. They should be your first point of contact, as they would understand the types of pain and the required treatments, so contact them ASAP.

Let me know if you need their contact details.


kelly_seares
4 weeks ago

Thank you stumbler. I do have an MS nurse I see every four weeks but last time I mentioned leg pain he didn’t seem to think it had anything to do with MS!


stumbler
3 weeks ago

@kelly_seares , perhaps you should share that “pain” link with your MS Nurse? 😉

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