@Blagaman182 

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Blagaman182

Overheating.. more like melting!

This is my third post on the subject because it’s changed so much! What started as me feeling rather hot has now turned into my face being visibly red and burning. My whole face feels like I’m leaning into a bonfire. The dr has done tests.. thyroid fine all my bloods fine etc so he basically won’t talk to me anymore and said to contact my ms nurse. The only problem is it can take 2-3 days for her to get back to me. My problem is I don’t know if this is a relapse or whether it’s just a problem that’s got worse. I remember having burning sensations on my stomach whilst driving probably about a year ago, my chest has been hot off and on for the last 6 weeks but now my face has been on fire for 4 days straight no letting up... can anyone help or have any ideas? All I keep reading is that heat can make ms worse.. this is not what it is.. it’s actually my bodies thermostat going wrong. Has anyone had this? I’m going out of my mind with worry that it’s something serious but obviously the drs not worried as all my tests came back fine!
@ItsMewithMS

I have some issues with temperature regulation but mainly with my feet turning cold suddenly often in the evening. I have just taken to warming up a rice bag as soon as it starts and keeping my feet on it. It is very similar to Renaud's but it seems many with MS note it is an issue for them. It would make sense that being instantly hot could also happen. I'm sure you are trying to manage the symptoms by using an available cold compress or water but it sounds like you need to bring your Neuro and/or MS nurse on board. You note in your bio that you are on a DMT...do they offer a 24x7 support line? they may have advice and/or be able to help you escalate the issue- sounds miserable so hopefully you can get some relief-

@Blagaman182

Thanks for your reply. Iv been sent from dr to ms nurse then onto my neuro but can’t get through. Have spoken to my plegridy nurse today she said it might be that that’s flared up older symptoms but who knows. I’m not really sure what the neuro can do anyway.