@hilaryk0757 

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hilaryk0757

On behalf of my brother

Hello. I am wondering if anyone has had the infusion of tysabri . My brother also has been diagnosed with remitting and relapsing ms but his is highly active. Of course the information on this medication makes him conserned with the side effects. From what I gather if he has this infusion it should keep him as he is if not his symptoms will increase. But he is obviously worried as he doesn’t even want to take paracetamol when he has a headache. I would be very grateful if anyone is on it to let me know how it is working for them Many thanks Hilary
@dmargarita

@hilaryk0757 hey, i had Tysabri for 2 years and it was very good for me. I had no relapses in those 2 years , and the only side effect was that i felt a little tiered after each infusion. I know the symptoms and side effect may be different for each person, but my experience was very good and hopefully it will also work very well on your brother. :D

@keepupthefight

@hilaryk0757 I was diagnosed a few years ago, and Ive been on Tysabri ever since. I was forunate enough to be treated a hospital that promotes effective treatments from the start. I was told i have highly active RRMS too. I don’t regret my decision to take Tysabri. I’ve been stable, and I have had no side effects from the treatment at all. I know many people do well taking Tysabri , it seems to be one of the most effective treatments available and most well tolerated. The risks associated with it, are monitored rigouroulsy. In fact, you can’t take it without being screened for those risks. and your Ms team will be actively checking to ensure you are monitored. From my own experience, Tysabri, allowed me time to recover, physically and mentally, from the initial attack. I was also someone relunctant to take medication without it being necessary. From my research, and the evidence that it can help slow down progression and relapses, I decided it was necessary. Wishing your brother all the best with his treatment. Don’t hesitate to ask anything else.