Ocrevus stopped due to COVID19
I was supposed to have my first Ocrevus infusion today but it has been deferred in light of the coronavirus outbreak and I will be treated with Brabio for the time being instead. I had emailed some concerns to my hospital (The National Hospital for Neurology and Neurosurgery in London) as I was worried about the risks involved with Ocrevus and the consultants all held a meeting yesterday afternoon to discuss them. The conclusion was that Ocrevus treatment would be delayed for all patients until more is known about the coronavirus and its trajectory. My consultant is of the view that it will become widespread across the country and everybody will be exposed to it. I was also informed that the risks associated with Ocrevus in real data has proven to be higher than clinical trials demonstrated. Therefore, it could be 3-6 months until Ocrevus is back on the table due to safety concerns. I know I'm a worry wart but I was really surprised when my consultant said nobody had yet asked the questions that I had. What are everyone's thoughts on all this?
I hope it will be okay....of course I thought about it, but since having my ocrevus treatment I have had the start of a cold twice, runny nose, coughing and sore throat, but within 3 or 4 days it had gone. My 2nd treatment occurred about 2.5 weeks ago only. I hope you will get the medicine that you need sooner rather than later. I sincerely wish you all the best here.
I am not due for my next infusion until mid April and hope much of the risk is gone by then. I also am not in an active zone although everyone is aware of it and concerned Just got a reassuring note from my daughter's school yesterday. I'm sure the country is going to run out of sanitizer! Dr Boster just put out a video on this topic a couple of days ago where he was advising to muster on and continue treatments for the most part - https://www.youtube.com/watch?v=eo_e-d2tJeg