Ocrevus plea for information
Hi all. Some of you may remember that earlier this year me and my sister were part of the MS Society media campaign for Ocrevus to be approved for PPMS, which my sister has (I’m RRMS). Following the requisite tests, she had a letter to say she would be eligible. Anyway, she’s just had a call to say the panel have now decided she isn’t, as there was NEDA between MRIs ( even though she hasn’t had a recent MRI). Obviously this is horrible news, having waited so long.
Does anyone with knowledge of Ocrevus know what would be needed for the powers that be to revise their opinion? Wouldn’t they need to give her regular MRIs to track evidence of disease activity? Are they saying ‘no’ forever?
Thanks all, any advice welcome....
DM me if you like - search on Ocrevus here. Familiarise yourself with the NICE guidelines on it and get stuck into the Bart's MS blog. All the info is there. NEDA is somewhat contested as the absolute measure of things. Look for that discussion on Bart's Blog. Best practice is annual MRI also Reade NICE guidelines on ongoing management. Easy to find with Google.
If they’re amenable, ask your consultant.