Last reply 7 months ago
Ocrevus for PPMS in Scotland. MIGHT

Roche/Gennentech will be applying soon to the SMC (NICE does not apply in Scotland) for Ocrevus to be valid for PPMS. They have enlisted, amongst others, the MS Trust to aid in the submission. The MS Trust are aware that I am starting the journey of on IPTR to gain access to Ocrevus and called me yesterday to provide a view on Ocrevus for PPMS. It is unfair to my family that I will only get worse with this. Walking and speech are already suffering, 48 and 4 years into this and not how I expected to be this young.
I would like to TRY Ocrevus, it MIGHT work it MIGHT not but to TRY and slow this progression would be great.

After all a MIGHT is all we have and a MIGHT is worth a lot to slow things down and POSSIBLY improve our quality of life.

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merfield
7 months ago

@watsoncraig, I understood you have to meet certain criteria like being able to walk- which I cant. I wish you Luck and hope it works for you. xx


watsoncraig
7 months ago

@merfield I can walk, just, better with the assistance of elbow crutches. Thanks


wjgregg
7 months ago

Dear @watsoncraig,

Good luck to you, sir. I am thinking only positive thoughts for you.

All the best,

Jon


vixen
7 months ago

Hi @watsoncraig, my sister is in very similar circumstances to you. She is 43, diagnosed with PPMS for 3 years. She was told a few weeks ago she has ‘made the list’ for Ocrevus, so hopefully there will be some activity around this soon. Please keep posting about your journey, best of luck with it all x


watsoncraig
7 months ago

@vixen Hopefully it is soon for your sister

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