@andrew4612 

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andrew4612

Ocrevus

Hi all, it’s fair to say I only post when I want a “rant” Today I received a letter after 5 weeks of trying to get a call off one of my MS nurses , Unfortunately I don’t meet the criteria to be given they opportunity to benefit from this drug ( what they fail to say is your 57,to old ) I have PP MS, diagnosis about 24 months ago , non of the pain meds work for me , physio not that helpful. Can I ask has anyone with ppms been put forward for this drug yet in the U.K. ? Unfortunately for them I will not let this lie, not sure how though because I’ll risk breaking an already fragile relationship
@ItsMewithMS

Sorry, posting from the US and 54 years old. Diagnosed about 15 years ago. Past DMTs of Copaxone (11 yrs) and Rebif (4 yrs) was just switched up to Ocrevus a month ago. The question my age never came up in the recommendation to change. My paperwork basically says that "since she is only 54 years old" inferring that an aggressive stance against MS should be taken due to how young I am ;-) I like that positive thought. Not sure how you can get a change in attitude ;-/ halting progression is pretty important to us...I understand your frustration and hope someone has some good advice of working through your health system which, looking from the outside, seems pretty oppressive. There are advocates here that are pushing for a nationalized health system. One of them being a friend that is a Dr in a rural farming community and I suspect she sees a lot of cases of people with no insurance as it is too expensive and only show up to her care when it is a big issue...and it is too late...and they have no insurance. I would hope for a solution where everyone has access to reasonable care that does not deny needed treatment that helps maintain individual well-being and dignity. A mighty wish to start the day...

@Stumbler

@andrew4612 , have a read through this :- https://www.nice.org.uk/guidance/ta585 Ocrevus is only considered for PPMS with a certain profile.