Last reply 1 week ago
Ocrevus

Hiyaaa, I’m 21 years old- final year student nurse living in Leeds. I was diagnosed with RRMS in June 2019, and was advised to choose from Tecfidera and Ocrevus. It was such a tricky decision but decided to go for Ocrevus- has anyone else been on this for first line treatment? and what have your experiences been?

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highlander
2 months ago

@cazsmith
Hi and welcome to the club.
If you look under your post there is a box marked Ocrevus  and tecfidera
That’ll take you to other posts made about them.
I’m on Tec but would like to move onto Ocrevus as it seems to be the better choice of the two.
Wish you luck 😀


lukezni
2 months ago

Hey, I just finished my 2nd half dose of Ocrevus yesterday. Both infusions went perfectly, I had no reactions or side effects. I felt a little sleepy but that was it. Nurses check your blood pressure, pulse and temperature every 30 mins so you are well observed during it. I was sharing the infusion room with 2 others and they also had no problems! As weird as it may sound I actually enjoyed my time during the infusion (apart from the needle in my arm) as it was nice to have conversation with people who are receiving the same treatment and sharing your experiences with ms together 😊 I’m back in 6 months for the full dose


cazsmith
2 months ago

@highlander thanks so much!! V useful to know, all the best to you too 🙂


cazsmith
2 months ago

@lukezni oh thanks, that’s very reassuring! I keep reading so much online and scaring myself haha but I guess everyone reacts differently. Glad it went well for you, how are you feeling after your second dose? Was it your first treatment?


lukezni
2 months ago

@cazsmith I was the same, trying to decide on a treatment then doing your own research is a scary experience. I hope that you’ll be ok! I’m feeling pretty good, I don’t feel any different than before 😊 yeah this is my first treatment, I had the options of ocrevus, lemtrada, tysabri and mavenclad and in the end I went with ocrevus as it was the one which seemed the most positive


cazsmith
2 months ago

@lukezni oh it really is! Having to process the diagnosis and decide treatment within a few weeks is overwhelming! Sounds like you’ve made the right choice for you though 🙂 I’ll let you know how it goes thanks so much for your help!!


lukezni
2 months ago

@cazsmith you’re welcome and best of luck to you 😁


pippa87
2 months ago

I choose Ocrevus, I have my second half on Tuesday. Had no problems with the infusion and have felt relatively normal since the first half, good luck!


dawson-mcwatch
2 months ago

I’m taking my second half next week but ever since I’ve gotten it I’ve been pretty fatigued an I can’t really walk to long before I start to stagger too but that’s probably cause I was taking predizone for the past 4 months so it’s gonna take awhile for my body to adjust to ocrevus I guess but best of luck


cazsmith
2 months ago

@pippa87 aw I’m glad that you’ve found it ok! All the best with your second dose, keep us updated!


cazsmith
2 months ago

@dawson-mcwatch I’m sorry to hear that, I’ve read a few people say they’ve had fatigue post infusion! Hope it improves for you once your body adjusts to the change


mich
2 months ago

I was diagnosed in March & chose to start on ocrevus in May – I had both half doses & felt completely fine afterwards. Due to have my next lot in October.
Good luck 😊😊😊xx


amanda709
1 month ago

@cazsmith I just had my first 1/2 infusion on Thursday. The infusion went perfectly fine, blood pressure remained good, no rashes or wild reactions. I have been very tired since though and quite nauseous, but the ocrevus nurse told me those are all manageable side effects. And she was right, I take non sleepy gravol to be able to work during the day but I am still trying to figure out how to over come the fatigue. Good luck


iamgeyser
1 week ago

Hi @cazsmith I also had to choose between the options of ocrevus, lemtrada, tysabri and mavenclad. I Chose Ocrevus this was half a year ago I’m about to get my second dose soon.
So far it’s working great! I feel very good, and the demyelination even decreased since latest MRI. I’m sure things will work out for you! Best of luck!


arya
1 week ago

Hi!!!
I’m on Ocrevus, but not as a first line (Copaxone, 2 years).
My first two infusions went perfectly, no side effects.
Good luck!

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