Last reply 6 months ago
Ocrelizumab treatment…

Started this today and as promised I would tell you all about it…
9.30am arrived was half hour early.
10am had a cup of coffee… I asked for tea mind
10.05 had my steroid
10.10 felt double lively
10.15 had antihistamine
10.20 didn’t feel so lively
1030 started ocrelizumab
It went absolutely fine now reactions turned out the fella next to me was the first person to be having the treatment in my area which made me the second. But it wasn’t a race so I didn’t come second lol!
Look it was so straight forward for me and everything has gone well so far. Can’t wait for my daughter to bring the plague back from nursery though let’s see how wonderful no immune system can be haha! But seriously it has gone well I hope it continues in this vein! I know I am extremely fortunate and I do appreciate the opportunity for this treatment.
4.30pm at home with a cup of tea.

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edmontonalberta
6 months ago

@marlon_dagg

Marlon – TY for the information… Please keep us updated.


marlon_dagg
6 months ago

Two weeks today fella and I’ll have my next dose and you’ll have another really bad write up to read @edmuntonalberta I’m not exactly a play write and hate giving running commentary so apologies for the way I presented it.


edmontonalberta
6 months ago

@marlon_dagg

No apologies necessary; I would really appreciate any updates (two weeks from now?) since I supposedly on the wait list for Ocrelizumab.

Besides, hearing your daughter is running around the Hospital spreading the Black Plaque made me smile… 😉


vixen
6 months ago

No, this is so new, it’s great to have updates on people’s experiences with Ocrevus, so do keep posting @marlon_dagg!


marlon_dagg
6 months ago

Yeah I’m two weeks I get the second half of my treatment then every six months after @edmontonalberta. And @vixen I get it’s brand new so I will keep you all updated. My ramblings might help lol!


grandma
6 months ago

Ramble all you like Marlon we like reading all rambles especially if they’re concerned with new treatments that might help us all🙏🏻🥊😜

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