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strictlysoca
1 year ago

Perhaps he might google Raynaud’s syndrome! It runs in my family but also can be triggered in MS. Hope this is helpful


jane_watts
1 year ago

@cyndi-beckley

My fingers & hands are numb quite a number of years now…… it’s MS.
I’m not a great believer in Google.
Try MS trust I’m sure you’ll find answers there.


grandma
1 year ago

Agree with strictlysocial, Raynauds is more of a possibility, ms being a ‘messages not getting through’ scenario, the white hands seem more of a Raynauds scenario👹😜


cindy_owen
1 year ago

My left two fingers go numb, cold then turns purple even when I’m wearing gloves I’m lost. this has started since sept last year.
When I see the doc, they are baffled as my fingers are not showing it. I’m sure they don’t believe me. I’m going to have to take a pic of them when it happens. Any ideas what this could be? Many thanks cindy


edmontonalberta
1 year ago

@cyndi_beckley

@grandma stated Raynauds; ask your physician to ensure it is not Scleroderma. Hands turning white was my 1st wife’s initial symptom. Every Doctor missed it until one made a 20 second accurate diagnosis without any tests…


milliepipkins
1 year ago

I have quite severe Raynauds and my hands go from white to blue to purple back to ghostly white! Not MS related for me, got it at least 6 years ago but only diagnosed last year. Lots of gloves, hot water bottles, certain weather can make it worse. Hope this helps.


strictlysoca
1 year ago

@jane_watts just having a sarcastic moment at the idea of a physician being stumped by a fairly run of the mill condition 🤔🤪🤓 agree that MS trust is a reputable source


jane_watts
1 year ago

@strictlysoca
I can’t understand docs that don’t pick up on this either. MS can be a trigger to Raynauds.
I’m with you 100% on your ‘sarcastic moment’, 👏


cyndi_beckley
1 year ago

The first thing they thought was Reynaulds, but it isn’t. According to Dr, if hand gets warm, color should return, but it doesn’t. It tends to go numb with use or after gripping shower head.


strictlysoca
1 year ago

Interesting. Have they considered that it could be the vibration type as well – “vibration white finger” -which is associated with use? Especially as you get it after gripping a shower which is vibrating.

Anyway Cyndi I’m not a doctor and I’m sure they’ve considered it. Apologies for earlier sarcasm. I hope you can resolve it and it’s not having too great an impact.

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