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tim_little
7 months ago

I have relapsing remitting Ms some days leg pain is unbearable but I am on my feet and I am lucky.


keepsmyelin99
7 months ago

Hello!

Sorry to hear that Tim ☹️
You’re right – there will always be someone worse off than us, but that doesn’t mean you should excuse your symptoms and struggles!

You should look forward to your good days and you have everyone here for you when things get a bit much and you need to offload.

How are you today?


tim_little
7 months ago

Today I have had a better day for the most part how about you


tim_little
7 months ago

Today I have had a better day for the most part how about you


tim_little
7 months ago

Sorry I clicked submit twice without realizing it


tim_little
7 months ago

keepsmyelin I hope you had a better day


timothy_little
7 months ago

I hope you get the chance of having a great life remain positive and have a great day.


keepsmyelin99
7 months ago

Hi @tim_little

I’m glad today has been a better one for you 😊

It’s going well so far for me today, I think the steroids have helped me as I am now I’m just the 1 crutch 😁

Thanks for asking!


tim_little
7 months ago

That’s great try to keep or get as much mobility as possible it can be a real confidence boost.I really hope you make a good recovery good luck


keepsmyelin99
7 months ago

Thanks @tim_little 😁
It definitely feels good to be able to move more freely and independently than before!


itsmewithms
7 months ago

@tim_little another point that was made on the board and my first Neuro told me was to not blame everything on MS. Life can throw us other curveballs ;-0 For example the issues I was having with my left hand that could have been excused as MS and therefore excused and had nothing done for it where the actual issue was a pinched nerve as my 1st rib wasn’t staying in position and it was pinching the nerve as it traveled through my chest area. With this diagnosed I started yoga and belly dance and once I strengthened my shoulders and watched my posture it went away.

The numbness in my thigh and what I am feeling there seems to be an impingement of my “lateral femoral cutaneous nerve” that has a name all itself “Meralgia paresthetica” I’ll have this looked at during a visit to Mayo clinic in Sept.

Basically look into all your symptoms and issues and don’t just throw in the towel. There may be things you can do like stretches or exercise that can help or for now I’ve been put on gabapentin for nerve pain that my neuro does not believe stems from my MS as much as the hip surgeries I had two years ago. Maybe there is scar tissue or other damage from that to repair to make it go away.

Keep searching and trying things to make things better. good luck!


shannon_devlaminck
7 months ago

@tim_little, I know exactly what you are saying. I am the exact same way. When I first started having symptoms or at least noticeable symptoms cause looking back now it has been a lot longer. But when I first noticed it took my wife 3 of the longest days of my life to get me to call the Doctor to get in to see him. Would always tell her “I don’t want to waste his time on me. There are people that are having more problems then me. Only can’t feel the left side of my body. I will be fine. It’s probably nothing just a pinched nerve somewhere or something.”

So your not alone in how you feel. Still something I am working on. It’s a hard thing for me at least to admit even to myself that yeah I do have an problem that makes me just as important as the next guy (or girl).

Oh the stories I could tell. Lol.

Have yourself a fantastic day.


rmdaniels
7 months ago

@tim_little
Good morning! Even the little things seem to wear on our mental frame of mind, yes? I’ve just started with severe itching in my hands & fingers. Even though my MRI just showed no new or active lesions, the neuro said 5 days of Solu-Medrol. He indicated that the Solu-Medrol may keep a new lesion from forming. It made me feel loads better just knowing we’re being proactive. It’s amazing how symptoms (old & new) keep my thoughts in a negative stressful pattern. It’s a battle, but we can 🥊🥊🥊 as @grandma used to say!


timothy_little
7 months ago

I would have to say I admire how positive you all are keep having a great and positive day . I will work on doing the same


Anonymous
7 months ago

before ms my headaches used to be insanly painful
maybe numb and i forgot
after ms has begun i hardly ever feel numb


timothy_little
7 months ago

I am glad your headaches settled down that is great.

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