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@DominicS 

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DominicS

Newly Diagnosed - in the UK?

NICE - the National Institue for Clinical Excellence has best practice guidelines for practitioners to follow when they diagnose a patient. If you are wondering what the path ought to be, who is expected to do what and when, and want to be able to refer your GP/Hospital team to what is shaping your questions then this is well worth a read. https://www.nice.org.uk/guidance/qs108 Sometimes you are not sure if something is 'right' and you are not sure what to say or to whom. The NICE best practice is a great place to start to set your mind at ease, or to refer someone else to as means for framing any questions you ay have as to why they are choosing to do something differently. Enjoy.
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@Highlander
@Highlander
 

@dominics Good bedtime reading! Just use it wisely, sometimes a little knowledge could be very annoying to the expert (EX as in has been and PERT as in stiff pr...) Good find. Keep smiling.

@DominicS
@DominicS
 

I agree. Beating someone around the head with it is definitely NOT the way to win their support. OTOH, understanding what ought to be happening and when or asking nicely why they have chosen to do somethng outside of the carefully developed guidelines can work wonders. I was a Bobby long ago. People blathering on that the knew their rights and telling me what I could and couldn't do didn't win any brownie points. I agreed to treat them respectfully as long as they did the same. Asking why is one thing, telling someone their job is quite another. Nonetheless, from reading posts on here it is clear that (especially) newly diagnosed people and their families are often unused to navigating the system that is the NHS. I mean, why would you be? A dagnosis thrusts you into a different world. The NICE guidance may help you navigate this new world.