Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


edmontonalberta
7 months ago

@pinny

I am 62 years old living in Canada & was diagnosed with PPMS in my early 60’s. My diet has completely changed; every morning the first thing in my stomach is Vitamin D. And if I have not had fish for a few days, Omega 3-6-9. My present wife makes me fruit Smoothies to drink daily – fresh fruit tastes better but I’ll take frozen berries. And a variety of nuts to munch on while I am watching TV.

Bread in scarcity, no milk at all, no red meat (i.e. Steaks or burgers) whatsoever although I do cheat once a month. As much fruit & vegetables as possible are in my stomach daily; fish (wild Salmon) whenever we can afford it. Plenty of fluids – the problem is that I need to be close to a washroom due to MS bladder challenges. Life isn’t perfect (sometimes embarrassing) yet I enjoy the good while dealing with the bad.


dominics
7 months ago

@pinny – asking for medical advice on the Internet is a bit of ht and mniss. If you are newly diagnosed then have a read of sites like these:

https://www.mssociety.org.uk/about-ms/treatments-and-therapies/disease-modifying-therapies/early-treatment

This is key:
“A new scientific consensus has been reached that changes the way relapsing forms of MS should be treated. The evidence now tells us that, rather than waiting to see whether more relapses occur, disease modifying therapies (DMTs) should be offered as close as possible to diagnosis.
Treatment benefits
We now know that early treatment improves long-term health and wellbeing by slowing down the build up of irreversible damage and reducing the number of relapses people experience. Starting treatment early is best but if you start later it can also have some benefits.

Speak to your neurologist (IMPORTANT!!!)
Everyone with a relapsing form of MS should speak to their neurologist or MS professional about treatment options and make an active and informed choice about what is right for them. If you don’t have a relapsing form of MS, or aren’t sure what kind of MS you have, it’s still important to have an annual review with your neurologist.

> Download our checklist for talking about treatments

What’s changed?
Experts used to think that when a person with MS had a ‘relapse’ it meant symptoms appeared and/or quickly got worse and then went away (or ‘remitted’).

Thanks to wider use of MRI scanning, we now have evidence that when symptoms get better, the damage that MS causes often doesn’t stop. So even when someone with MS is not having a relapse, MS may carry on attacking their body. This could lead to nerve damage that can’t be put right.

This new evidence has changed what we understand about MS and how to treat it. Rather than waiting to see whether more relapses occur, DMTs should be offered as close as possible to diagnosis, before damage to the body has built up. What does this mean for me? If this news affects you, we recommend that you speak to your neurologist or MS specialist about your treatment options, so you can decide what’s right for you. If you don’t have a neurologist or MS specialist, you should visit your GP and request a referral.

Relying on the opinion of non-specialists for advice on how to proceed with treatment is similar to asking a subsistence farmer in Vietnam if you ought to have a broken arm treated!

The amount of research, study, testing etc that underpins a scientific consensus is vast. Why ignore it? We are mere peons 😉

Best,

Dominic


californiadreamin
7 months ago

How did the doctor conclude it was mild? The main issue is that it’s really hard to know it’s mild ahead of time. You don’t want to lose time sustaining damage if you can avoid it. I will post a few good links go watch here in the next day and would encourage you to learn all you can do you can make your own informed decision. The key is to look good scientific information that gives you a reasonable set of odds to do well.

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.