@Me1123 

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Me1123

Newly Diagnosed

I was diagnosed with MS early this month (December 2018). Still going through all the steps to get started on Gylenia medication. I'm still not sure what to think or how to feel about all of this. And to make me feel even worse, it's very possible that I had a flare up about 3 years ago that was totally misdiagnosed. What do I do now? How will my life change? What about my children?
@Stumbler

Hi @me1123 and welcome to our exclusive club. I know you'd have preferred not to join, but this is just one of those curve-balls that life can throw at you. For the moment, don't get weighed down on what to think or how to feel. You're probably still in shock from the diagnosis, so you just need to sit down and allow yourself to process this information. Although, you may want to concentrate on Christmas first! A diagnosis does tend to explain your previous unexplained/misdiagnosed medical dramas. But that's all history. So, how will your life change? Well, that's the future and nobody knows what tomorrow will bring for them. But, you have been given the opportunity to reappraise your life. Your ongoing health will now be a priority. Lining healthily, eating healthily and avoiding/managing stressful events will all play a part for you. Your children will still see you as their parent and your bond will be even stronger. If your MS is noticeable, your children will develop into kind and considerate adults, aware that life can play cruel tricks on us. But, generally, MS is no longer the condition that it used to be. There have been a raft of medical developments over recent years, that have produced the number of treatments that are now available. More is now known about MS and discoveries are opening new avenues of research with the possibility of further treatments. There's never a good time to get MS. But, if it's going to happen, then now isn't a bad time. So, take your time, enjoy Christmas and then see how the dust settles.........

@grandma

Hi @me1123 and welcome to the very exclusive club🎉We're all quite safe here, whole range of ages (I'm 62) types of ms, experiences,etc., you have only recently been diagnosed, sit back, have a cuppa, don't rush anything and try not to stress, stress is the worst thing in the world for ms, I hate to say this, and wouldn't wish a dxd of ms on anyone but you have picked a good time to be dxd. There are so many DMT's available now, in fact you're already on the list and due to start soon. There wasn't any choice 25 years when it was my turn, so with any luck and a fair wind you should have a fairly 'normal' life. Don't worry about the kids, they are very resilient and when it is explained to them, in small doses, that Daddy/Mummy can't quite do all the things that they used to, and they might have to be a little more thoughtful, I.e. Not disturbing you when you're having a nap, but if they let you rest you will be able to take them swimming,to the park, whatever floats your boat. They will understand and won't hold it against you! We're always here for a natter, a moan, a cry, a rant, a celebration whatever, we've all been there so we know what it's like, and just remember, with ms, there's no such thing as a silly question👍😅😍