@Sdkpi 

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Sdkpi

Newbie here!

Hi, I'm Sofia and I was literally diagnosed last week after suffering very mild symptoms here and there since January 2019 which were overlooked, belittled and misdiagnosed. Unfortunately I ended up going into a massive episode (I still don't know lingo) and i woke up one morning not being able to walk or even being able to pick up my phone to call someone for help. I'm not on any treatment yet as I'm still interim waiting to be seen by out patient teams. There's so much I don't know and so much I'm going to have to learn to best prepare me for navigating my life going forward. Im hoping I'll be able to meet people and build meaningful relationships that'll help me in my new life!!!
@Highlander

@sdkpi Hi Sofia. Welcome to the club.. Under your post above you'll see some boxes relating to some of the things you mentioned, click on them and it'll take you to other posts made about that subject.. Feel free to ask anything you like we'll try and find an answer one way or another. You'll soon pick up the lingo so don't worry about that. You don't have to learn it all in one day... Just ask.. above all else, keep a sense of humour it ain't all doom and gloom. Welcome again 😄 I'm sure you'll get a few more hello's soon from others.

@Vixen

Hello @sdkpi and welcome to Shift! So, that's good you're in London as you have great hospitals at your disposal; which are you with? Sorry that you're so young and dealing with this, fresh on the tails of Covid. This has caused a backlog and delays in out patient treatment and getting advice on DMDs. Let me tell you that for most people, it can take up to a year to fully absorb and get used to what 'the new normal' looks like. Having a diagnosis may alter your path a bit, but always set your sights on what you want, even if that might seem impossible. You are young, and the rate at which research and medication is gaining pace has really sped up in the last 10 years. Treatments exist now for all forms of MS, some of which weren't even licenced 5 years ago. So, avoid googling and always stick to registered sites like this, MS Society/Trust. Take really good care of yourself; good diet, exercise (but don't overdo) and don't smoke. Stress in all its forms has a real impact on diagnosed folk, so we have to learn to fine balance. You may be OK, but lots of us get really affected by heat, such as is today, or by taking hot baths/showers. Anyway, post any questions, you are in good company here :-) x