Last reply 10 months ago
Newbie

I havent been formally diagnosed with ms. Its just suspected at the moment. I keep looking at people’s stories and it seems to come on gradually with lots of little symptoms. What I have came on the same day and the next day I couldn’t walk anymore. Does this fit an ms diagnosis? Just so anxious to get back to normal bc it’s been 2 months. I can walk but the heaviness is awful and I cant last a full day without fatigue. If i ever get back to normal again is the scariest thing, but i keep hearing people say it does happen so I’m keeping my Hope’s up. Any advice during this interim period?

Thanks

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I am currently in the same boat somewhat! I am in the hospital on iv steroids after my symptoms started all of a sudden. I started with a bad migraine that wouldn’t go away. That progressed into right sided weakness, pins & needles in right foot, leg spasms, Charlie horses in right leg, right eye blurry with spots.
Neurologist have listed it as probable MS flare up after a few lesions found on scan and have been treating with high dose steroids. There isn’t enough evidence to even concretely diagnose at this time and dr said it could take a long time. Feel like I am in limbo. After 3 days of steroids and other meds some of my symptoms are start to get better. With all the technology and science you think they would know enough about MS that they could find away to give us definitive diagnosis


tumbleweed
10 months ago

@ljturner Hi there. This happened to me too except slightly differently, I had gone downhill over a year with my walking, was diagnosed with fibro 10 years ago so thought I was struggling there. Woke up one morning and couldn’t walk at all, my legs wouldn’t hold me up and had terrible vertigo etc. 8 months later I can walk a little but legs very heavy and hips don’t move properly. I am just getting through tests at the moment, MRI’s, 2 x lumbar punctures, nerve conduction test, lots different bloods. It’s a long slow journey and I wish I could say you may just be fine soon but that’s not necessarily the case. Limbo seems to be too long a journey and a scary one yes. The worst thing is not being able to determine the pace which is a hard thing!


ljturner
10 months ago

@tumbleweed, clever name there. I cant stand the not knowing. I feel like if you just tell me one way or the other I can move forward and deal with this thing. I feel like I’m faking it because I dont have a real answer. The fatigue is the worst though. I cant make it through a whole day. Oh and I’m sick of complaining about it, but I cant stop!


janner
10 months ago

Thats how it happened with me
Woke upon Sunday morning in October 1986 and couldn’t move my right leg.

Scared the living daylights out of me.
4 hours later, I could walk, but, my leg weighed a ton, or so it felt.

Today, my whole RH side is weak
I still have days when walking is tough, when the leg is heavy, but, I’m alive, breathing and still drinking wine, often with my medication.

For you, it sounds to me, like MS
It will probably improve with time, but, if it is MS, it will never be “right”.

If it’s any solac, MS is one of the most common ailments the UK today, you are in good company.

Good luck


janner
10 months ago

Thats how it happened with me
Woke up one Sunday morning in October 1986 and couldn’t move my right leg.

Scared the living daylights out of me.
4 hours later, I could walk, but, my leg weighed a ton, or so it felt.

Today, my whole RH side is weak
I still have days when walking is tough, when the leg is heavy, but, I’m alive, breathing and still drinking wine, often with my medication.

For you, it sounds to me, like MS
It will probably improve with time, but, if it is MS, it will never be “right”.

If it’s any solac, MS is one of the most common ailments the UK today, you are in good company.

Good luck


tumbleweed
10 months ago

ljturner. I hear you, exactly the same here. alot of fear and anxiety builds up in the not knowing. It’s horrible, suddenly all your ideas about your life are put on hold and sit suspended because you have become disabled overnight and don’t know WHY! Just hang in there, one day at a time, you will get there but it’s not a nice stage I know….just go through the processes of looking after yourself well as you would if it were happening to someone else you care about. I have had so much head shit about it, it’s not being kind to yourself and ultimately not nice to your body.

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