Newbie..
Hi everyone , just got newly diagnosed with ms..Back in January had optic neuritis treat with steroids..In may I was at work and was dizzy and vomiting sweating..Ever since has been a down hill..I had vertigo and paralized left side of the body and liver virus for 5 weeks ..I had kidney and urine infections and ear infections..my eye sight has dwindled..I had 3 MRIs , cat scan heaps of blood tests finally a lumbar puncture and blood conformed it..I can not take any ms drugs at the moment I see my neurons in September ..But I do take gabapentin for nerve pain all through my body.But also I take a medication protandim which is the natural form of trifedra??? (Sorry don't know spelling) so no nasties .I've been taking that for 3 weeks , but needs time to get in system. I also take vitamin D , olive leaf extract ( for immune) Gabapentin for pain relief ..I'm hoping to get off the pain relief next when I see my Dr. I have had trouble through all this 3 months of throat tightening and my tempreature regulations..The throat thing might have been caused by stressed so destressing went to see first time a kinesiologist..So looking forward to the next appt..I can't work right now as I'm sort of in limbo until I get a medical clearance to work..has any body else had heat and cold temps hard to regulate and what to do? And also eating warm or hot foods having issues...so if anyone wants to start on protandim let me know, all natural instead of the synthetics from all the other ms drugs . its not for everyone watch a video on youtube about it..but would love any feedback of anyone else's experience x
It sounds like you have a lot going on, I'm sorry to hear it. I do struggle with heat and cold too, it seems like MS makes it difficult to cope with fluctuating temperatures. MS has so many symptoms and it's different for everyone, it makes it hard sometimes for people without MS to understand. I'm not sure about the Protandim, apparently it's a mixture of 5 herbal supplements (milk thistle, bacopa extract, ashwagandha, green tea extract, and turmeric extract) so I don't think this is a natural version of Tecfidera really. Tecfidera was previously marketed in a similar form as a treatment for psoriasis, and it was less expensive in that form than it is now. But that's the way pharma goes, prices go up it seems. I hope your visit with your neuro next month goes well.
Yes protandim is the natural version as the person who sells it has had ms for 10 years ..Its all about diet as well ..my friend only takes protandim she has been on it two years 1 tablet every day ..she detoxes her body also in fresh fruit and vegetable juicing natural ways...her last MRI was stable and she hasn't been on any pain relief..I have just started this medication it won't hurt your body as its all natural. .so I haven't got anything to lose..I'm with out pain due to my nerve blockers I'm taking..I can walk around I'm just starting to get back into normal everyday things ..due to me being sick with no pain relief given. Everyone is different with their ms...I'm just letting people know the natural ways it may suit some people..I don't drink coffee ..I drink water from filter only so no metals and nasties go in my body..I'm on herbal toothpaste I've changed my soap and shampoo and conditioner and clothes washing powder to go natural..I'm working so hard on my body to go natural as possible before I see my neurologist to show her how I have improved ..by changing simple things in your environment as well as diet and exercise...I'm just getting back INI normal stuff..I can get back to work yet ...yeah I had a lot going on before as I reacted to a hepB vaccine people with ms can have relations to vaccines..and bad luck for me I did...so no more vaccines for me as I went through hell...now its just getting the natural stuff in my system ( takes time) but I've chosen that road at the moment as I have nothing until see neurologist.. Which in September if I have improved I won't be taking the ms drugs .